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Bonus Episode: MS In the 21st Century — Challenges of Communicating About MS Progression With Your Healthcare Provider


This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.

In this special episode of RealTalk MS, we're talking with Pieter van Galen and Amanda Montague about that sometimes-challenging conversation with your healthcare provider about MS progression.

We're also highlighting My MS Roadmap, a free tool designed to make conversations with your healthcare provider easier by offering clear and easy to understand definitions of the complex language used to describe multiple sclerosis.

Amanda Montague is the Chief Mission Officer for the Multiple Sclerosis Association of America and Pieter van Galen is a freelance trainer and consultant based in Belgium. Pieter has been living with MS since being diagnosed in 2006.

Both Amanda and Pieter are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.


EPISODE 229: Evidence Shows that MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi


Last week, a research team at the Harvard T.H. Chan School of Public Health presented compelling evidence that the Epstein-Barr Virus (EBV) triggers multiple sclerosis. So, we're taking a deep dive into the role of EBV and MS.

We'll review the breakthrough results of this research and we'll re-share our conversation with one of the researchers in this game-changing study.

We'll review the status of an experimental cell therapy that's designed to remove the EBV virus from infected b-cells in people with progressive MS.

And we'll update you on a clinical trial that's underway to test an EBV vaccine.

We have a lot to talk about! Are you ready for RealTalk MS??!


Researchers at Harvard present compelling evidence that Epstein-Barr Virus (EBV) triggers MS  :22

Dr. Kassandra Munger discusses EBV and MS   4:41

What else do we still need to know?  13:28

ATA-188, EBV, and MS  14:06

Dr. AJ Joshi discusses what scientists are learning from the ATA-188 clinical trial  14:49

What about an EBV vaccine?   27:21

What??? Magic???  28:33

Share this episode  30:23

Be sure to catch MS Got Talent  30:43


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:  https://realtalkms.com/229


ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS
https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS

STUDY: Longitudinal Analysis Reveals High Prevalence of Epstein-Barr Virus Associated with Multiple Sclerosis
https://science.org/doi/10.1126/science.abj8222

MS Got Talent LIVE on Jan. 29th at 7PM Eastern/4PM Pacific
https://mssociety.donordrive.com/participant/msgottalent
or https://twitch.tv/mssociety

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

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http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 229
Guests: Dr. Kassandra Munger, Dr. AJ Joshi

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, EBV, EpsteinBarr, RealTalkMS

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