RealTalk MS

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RealTalk MS Is On Right Now!

Join host Jon Strum each week as he breaks down the latest multiple sclerosis news. We’re talking about the amazing MS research that’s currently being done in laboratories around the world — and we’re talking to some of the brilliant neuroscientists who are conducting that research!

We’re monitoring the debate among our lawmakers surrounding prescription drug price transparency, healthcare legislation, funding for new and experimental MS research — anything that might impact your MS treatments.

And we’re talking with MS activists, MS caregivers, and other heroes who strive to raise the bar for those who battle MS every day.

If you’re dealing with multiple sclerosis in your life — as a patient, caregiver, family member, or friend — join us for RealTalk MS.

Episode 77: With Shift.ms Founder George Pepper & Shift.ms Community Member Aoife Kirwan



George Pepper was diagnosed with multiple sclerosis in 2009, at the age of 22. He initially found it difficult to connect with others his own age who were living with MS, so George set up a website where people living with MS could meet and share their experiences. That website evolved into an online community called shift.ms, and today, more than 18,000 people participate in the shift.ms community. My guests today are the founder of shift.ms, George Pepper, and Aoife Kirwan, a member of the shift.ms community.

George Pepper

We're also talking about a new report that reminds us that there's a lot of fake health news online, how Medicare rules are costing people living with MS more money, a global response to talking about sex and MS, and a study that will introduce you to the Caregiver Strain Index, a reliable tool in measuring MS caregiver burden.

We have a lot to talk about! Are you ready for RealTalk MS?!
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A solution to Loneliness & MS   :23

Study Results Warn Against “Fake Online Health News”  2:48

Medicare Policies Cost People With MS More Money  8:50

MS International Federation Talks About Sex & MS  12:57

Caregiver Strain Index Is A Valid Measurement of Caregiver Burden  14:33

My Interview with George Pepper & Aoife Kirwan  18:24

Join The RealTalk MS Conversation  30:25

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JOIN THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jonstrum@RealTalkMS.com
Phone: (310) 526-2283

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LINKS
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The Most Popular Health Articles of 2018: A Scientific Credibility Review

Trends in Coverage for Disease-Modifying Therapies for Multiple Sclerosis in Medicare Part D

Sex Life & MS

Measuring Burden in Caregivers of People with Multiple Sclerosis: Psychometric Properties of the CSI Questionnaire

Shift.ms

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RealTalk MS Episode 77
Hosted By: Jon Strum
Guest: George Pepper & Aoife Kirwan

Tags: MS, MultipleSclerosis, MSResearch, Caregiving, ShiftMS, MSIntFederation, RealTalkMS