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Photo courtesy of National MS Society

RealTalk MS Is On Right Now!

Join host Jon Strum each week as he breaks down the latest multiple sclerosis news. We’re talking about the amazing MS research that’s taking place in laboratories around the world — and we’re talking to some of the brilliant neuroscientists who are conducting that research!

We’re monitoring the debate among our lawmakers surrounding prescription drug price transparency, healthcare legislation, funding for new and experimental MS research — anything that might impact your MS treatments.

And we’re talking with MS activists, MS caregivers, MS fundraisers, and other heroes who strive to raise the bar for those who battle MS every day.

If you’re affected by multiple sclerosis — as a patient, caregiver, family member, or friend — join us for RealTalk MS.

Episode 446: MS Advocacy and the National MS Society’s Public Policy Conference with Steffany Stern


175 MS activists are heading to Washington, D.C. next week for the National MS Society's Public Policy Conference. Their mission: to bring the concerns of the MS community directly to lawmakers on Capitol Hill.

Steffany Stern

When it comes to the legislative support for healthcare and medical research, it's no secret that these are unusual times. Joining me to brief us on the National MS Society's ongoing advocacy efforts and give us a sneak peek at the specific legislative issues we'll be taking to Capitol Hill is the National MS Society's Vice President of Advocacy, Steffany Stern.

We'll also share updated results from an important study that show the risk of developing MS if a close relative is living with the disease is significantly higher than researchers originally thought.

And we'll give you all the details of a Phase 1 clinical trial that's focused on a novel approach to CAR-T cell therapy for MS.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Preparing for the MS Society's Public Policy Conference  :22

I'm asking for your support:  1:37

An update to a 2015 study shows close relatives of people living with MS are 100 times more likely than the general population to develop MS  2:15

A novel approach to CAR-T cell therapy for MS is recruiting for a Phase 1 clinical trial   4:26

Steffany Stern, the Vice President of Research at the National MS Society, shares a major advocacy win and previews next week's Public Policy Conference in Washington, D.C.  7:27

Share this episode  33:04

Next week  33:25


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LINKS

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JOIN: Become an MS Activist
https://nationalmssociety.org/advocacy

STUDY: A Prospective Study of Individuals at Risk of Multiple Sclerosis Informs the Design of Primary Prevention Studies
https://onlinelibrary.wiley.com/doi/10.1002/acn3.70340

GEMS Study Recruitment
https:/nationalmssociety.org/news-and-magazine/news/ms-study-alert-gems

RealTalk MS Ep. 439: Preventing MS with Dr. Bruce Bebo
https://realtalkms.com/439

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https://clinicaltrials.gov/study/NCT06680037/#contacts-and-locations

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RealTalk MS Episode 446
Guests: Steffany Stern

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