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Photo courtesy of National MS Society

RealTalk MS Is On Right Now!

Join host Jon Strum each week as he breaks down the latest multiple sclerosis news. We’re talking about the amazing MS research that’s taking place in laboratories around the world — and we’re talking to some of the brilliant neuroscientists who are conducting that research!

We’re monitoring the debate among our lawmakers surrounding prescription drug price transparency, healthcare legislation, funding for new and experimental MS research — anything that might impact your MS treatments.

And we’re talking with MS activists, MS caregivers, MS fundraisers, and other heroes who strive to raise the bar for those who battle MS every day.

If you’re affected by multiple sclerosis — as a patient, caregiver, family member, or friend — join us for RealTalk MS.

Episode 291: Disclosing Your MS to Friends and Family with Dr. Victoria Leavitt


To tell or not to tell. When it comes to disclosing your MS to friends and family, that is the question. Choosing when to disclose and to whom to disclose is a deeply personal decision. Joining me to talk about some of the risks and benefits of disclosing your diagnosis is Dr. Victoria Leavitt, a clinical neuropsychologist, researcher, and assistant professor of neuropsychology at Columbia University.

Dr. Victoria Leavitt

Well also tell you about a just-announced collaboration to develop an Epstein-Barr Virus vaccine (and we'll tell you why that could be a huge step toward ending MS forever!)

We're sharing the details behind the MS International Federation's application to have three MS disease-modifying therapies added to the World Health Organization's list of essential medicines.

We'll tell you how a study that tested a fall prevention program for people living with MS who used a wheelchair or scooter full-time may have failed…and yet succeeded.

We're sharing the results of a study that set out to determine whether people over 50 who were living with MS were increasing their use of health care services because of their MS or simply because they were aging.

And we'll tell you about a study that focused on the psychosocial impact of MS on children who had a parent living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Disclosing Your MS  :22

Merck teams up with ModeX Therapeutics on an EBV vaccine  1:10

The MSIF applies to have 3 DMTs added to the WHO list of essential medicines   3:22

STUDY: A fall prevention program for people with MS who are full-time wheelchair or scooter users  6:47

STUDY: Health care usage among people over 50 who are living with MS  9:33

STUDY: The psychosocial impact of MS on children with a parent living with MS  12:02

Dr. Victoria Leavitt discusses the risks and rewards associated with disclosing your MS to friends and family   15:24

Share this episode  32:35

Have you downloaded the free RealTalk MS app?  32:55


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/290

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Editorial: Toward Equitable Access to Treatment for Multiple Sclerosis
https://thelancet.com/action/showPdf?pii=S1474-4422%2823%2900041-8

STUDY:  Online Delivery of the Individualized Reduction of Falls Intervention for Persons with Multiple Sclerosis Who Use a Wheelchair or Scooter Full-Time: A Pilot Study
https://meridian.allenpress.com/ijmsc/article/25/2/82/491441/Online-Delivery-of-the-Individualized-Reduction-of

STUDY: Outcomes and Health Care Service Use in Adults 50 Years and Older With and Without Multiple Sclerosis
https://meridian.allenpress.com/ijmsc/article/25/2/56/486192/Outcomes-and-Health-Care-Service-Use-in-Adults-50

STUDY: The Psychosocial Impact of Parental Multiple Sclerosis on Children and Adolescents: A Systematic Review
https://meridian.allenpress.com/ijmsc/article/25/2/63/487609/The-Psychosocial-Impact-of-Parental-Multiple

Join the RealTalk MS Facebook Group
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https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 291
Guest: Dr. Victoria Leavitt

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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