Episode 160: The Emotional Impact of the Pandemic on People Living with Progressive MS with Dr. Anthony Feinstein

jonstrum

4 years ago

Of all the people living with MS, you might assume that people living with progressive MS have experienced the highest levels of anxiety and depression related to the threat of COVID-19. A research team found themselves at the right place at the right time — conducting a different progressive MS study. They quickly pivoted to investigate the emotional impact of the COVID-19 pandemic on people living with progressive MS.

My guest is Dr. Anthony Feinstein, a professor of psychiatry at the University of Toronto and a neuropsychiatrist. He is also the principal investigator of the CogEx study, and he's sharing the newly published results of his team's work.

We're also talking about the importance of your vote in the upcoming U.S. election, and we'll help you check your voter registration and even register to vote.

The National MS Society's Ambassadors Ball is happening on September 30. This year it's virtual and it's free. We'll tell you how you can attend.

You'll hear the details of a study that revealed some sobering truths about the financial toxicity of MS. And we'll let you know how you can participate in the MS Society's survey of the economic impact of MS.

We'll also give you a heads-up about how the slowdown in U.S. mail delivery may impact the delivery of your MS disease-modifying therapies.

And we're talking about a study from Australia that demonstrates how engaging with credible health resources (Um…hello!) often leads to adopting a healthy lifestyle.

We have a lot to talk about! Are you ready for RealTalk MS??!

Check out RealTalk MS on Amazon Music! :22

MSVirtual2020 — there's more to come 1:17

Advocacy begins by casting your vote 3:49

Join me at the National MS Society's Ambassadors Ball 6:34

Measuring the financial toxicity of MS 8:43

You can participate in the National MS Society's survey of the economic impact of MS 10:36

Mail delivery delays = disease-modifying therapy delays 12:01

Survey shows that people who engage with health resources adopt a healthy lifestyle 13:30

My Interview with Dr. Anthony Feinstein 16:03

Share this episode 22:21

Donate to the National MS Society COVID-19 Response Fund 22:42

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

The Emotional Impact of the COVID-19 Pandemic on Individuals with Progressive Multiple Sclerosis

Vote.gov

National MS Society's Ambassadors Ball

STUDY: Patient-Reported Financial Toxicity in Multiple Sclerosis: Predictors and Association with Care Non-Adherence

National MS Society Survey: The Economic Impact of MS

I'm a Veteran Who Gets My Medicines Through the Mail

STUDY: Greater Engagement with Health Information is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group