Episode 166: Managing MS-Related Fatigue with Dr. Bardia Nourbakhsh and Dr. Kathy Zackowski

jonstrum

4 years ago

Fatigue is considered to be the most common MS symptom and also one of the most disabling because fatigue can interfere with every aspect of someone's life — at home, at work, in their relationships — in every way, fatigue can have a profound impact on your quality of life. We're talking about how to best manage MS-related fatigue with two experts on the subject, Dr. Bardia Nourbakhsh, and Dr. Kathy Zackowski.

Remembering Karen Jackson

We're also remembering Karen Jackson, an MS activist, tireless advocate, a supporter of people-powered research, friend to this podcast, and a special person who we were lucky to know.

We're also talking about the National MS Society's first recommendation for stem cell therapy as a treatment for MS. This recommendation comes with some important caveats and we'll cover them all.

We'll share some very disturbing survey results that reveal widespread mistreatment of MS patients by their family caregivers. And we'll tell you what we're doing about it.

If you're an adult living with MS, we'll share the details of an opportunity for you to participate in a clinical trial from the comfort of your own home, as researchers study the health benefits of tele-exercise.

And you'll meet a true difference-maker in the MS community when you meet Cristina Antelo, who submitted the winning bid in a fundraising auction for the National MS Society. And the item that Cristina bid on was…..this interview!

We have a lot to talk about! Are you ready for RealTalk MS??!

Remembering Karen Jackson :22

National MS Society issues a recommendation for stem cell therapy 4:05

NARCOMS survey uncovers widespread mistreatment of MS patients by their caregivers 8:34

Adults with MS wanted for tele-exercise clinical trial 13:08

My Interview with Dr. Bardia Nourbakhsh & Dr. Kathy Zackowski 14:44

My Interview with Cristina Antelo 31:23

Share this episode 44:21

Donate to the National MS Society COVID-19 Response Fund 44:44

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Autologous Hematopoietic Stem Cell Transplant in Multiple Sclerosis: Recommendations of the National Multiple Sclerosis Society

SURVEY: Abuse and Neglect of People with Multiple Sclerosis: A Survey with the North American Research Committee on Multiple Sclerosis (NARCOMS)

To Participate in the Burke Neurological Institute Tele-Exercise Clinical Trial Contact Amy Bialek
Phone: (914) 597-2347
Email: amb3003@med.cornell.edu

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 166
Guests: Dr. Bardia Nourbakhsh, Dr. Kathy Zackowski, and Cristina Antelo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS

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