Episode 175: People-Powered MS Research with the CEO of iConquerMS Sara Loud

jonstrum

4 years ago

Research creates the future for people affected by MS. And clinical research can't happen without your participation. Joining me as my guest is Sara Loud, the CEO of iConquerMS, the people-powered-research network that puts you at the center of MS research.

We're also celebrating a whole list of MS advocacy wins that will translate into making life better for people living with MS in the United States.

We'll tell you about a study that clearly demonstrates why it's essential to start disease-modifying therapy once someone receives an MS diagnosis.

We're sharing the results of a study about MS-related pain. And we'll tell you about a new set of Amazon Alexa features that make being a long-distance care partner easier.

We have a lot to talk about! Are you ready for RealTalk MS??!

Celebrating MS advocacy wins :26

Effects of disease-modifying therapy on disability among people living with relapsing-remitting MS over 15 years 4:33

Study reveals new information about MS pain 6:01

Amazon Alexa has new features especially for care partners 9:11

My interview with Sara Loud 11:58

Share this episode 28:39

Donate to the National MS Society COVID-19 Response Fund 28:59

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society: Advocate for Change

STUDY: Effect of Disease-Modifying Therapy on Disability in Multiple Sclerosis Over 15 Years

STUDY: Characterizing Chronic Pain Phenotypes in Multiple Sclerosis: A Nationwide Study

RealTalk MS Episode 170: Special MS Pain Episode

For More Information About iConquerMS:

Website: iConquerMS.org
Sara Loud's Email: sloud@acceleratedcure.org

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS