Madison Copot was diagnosed with MS about 9 years ago, just before turning 13. And when she received her diagnosis, Madison was also told that she was too young to be seen by an MS specialist. Today, Madison is a 21-year old woman, and if you want to hear what a real-life superhero sounds like, you won't want to miss my conversation with Madison.
While we're on the subject of superheroes, we'll also tell you about Darkhawk, who debuted last week as the first Marvel superhero whose alter-ego has been diagnosed with MS.
We're sharing the American Academy of Neurology's COVID-19 vaccine guidance. And we have a very specific message to share with anyone living with MS who is still on the fence about being vaccinated.
You'll learn about new NIH-funded research that may extend our understanding of how MS happens.
We'll also tell you about a clinical trial getting underway in the U.K. that's exploring whether Mavenclad can slow the worsening of hand and arm function in people with progressive MS.
And we'll share the line-up of no-cost CAN-DO MS virtual programs taking place throughout the month of September.
We have a lot to talk about! Are you ready for RealTalk MS??!
Darkhawk returns…and this time, he has MS :22
AAN issues its formal COVID-19 vaccine guidance 2:34
NIH-funded research will examine cell communication in the central nervous system 6:59
CHARIOT-MS clinical trial launches in the U.K. 9:54
CAN-DO MS September programs focus on staying in charge of your life 11:28
My conversation with Madison Copot 13:43
Share this episode 26:52
Download the free RealTalk MS app for your iOS or Android device 27:13
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance
National MS Society Additional (3rd) COVID-19 Vaccine Dose Guidance for People Living with MS
https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS
Darkhawk (2021) Issue 1
https://www.amazon.com/Darkhawk-1-5-Kyle-Higgins-ebook/dp/B095836W91/
COVID-19 and Vaccination in the Setting of Neurologic Disease: An Emerging Issue in Neurology
https://n.neurology.org/content/early/2021/07/29/WNL.0000000000012578
ChariotMS Clinical Trial
https://www.mssociety.org.uk/research/explore-our-research/research-we-fund/search-our-research-projects/can-cladribine-slow
Can-Do MS September Programs
https://www.cando-ms.org/programs
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS
https://itunes.apple.com/us/app/realtalk-ms/id1436917200
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RealTalk MS Episode 209
Guest: Madison Copot
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID-19, Marvel, RealTalkMS