Everybody remembers the day — sometimes, even the moment — when they were diagnosed with MS. And in that moment, you may not have known very much about living with MS, but you probably felt like everything was about to change.
One of the most common emotional responses to MS is grief. Joining me to talk about the relationship between grief and MS, as well as share some specific steps and strategies that you can take to process and manage grief in a healthy way is clinical psychologist Dr. Rosalind Kalb.
Dr. Kalb has specialized in MS care and education for almost 40 years. She's a past Vice-President of the Professional Resource Center at the National MS Society. And currently, Dr. Kalb is the Senior Programs Consultant for Can Do MS.
We'll also share the details of the experiments conducted by two German scientists that may shed important light on the process of myelin repair.
We'll tell you what a research team learned from the largest MS fatigue study ever conducted in the United Kingdom.
We'll highlight some of the changes to the updated guidelines for diagnosing and treating MS in the U.K.
And we'll share the results of an extension study of Kesimpta presented last week at the annual meeting of the European Academy of Neurology.
We have a lot to talk about! Are you ready for RealTalk MS??!
Grief and MS :22
Scientists may have discovered two proteins that stop myelin repair 1:26
Researchers share results of the largest MS fatigue study in the U.K. 3:39
Updated guidelines for diagnosing and treating MS in the U.K. 6:31
Kesimpta extension study participants show no evidence of disease activity after 4 years 8:57
Dr. Rosalind Kalb discusses grief and MS 11:42
Share this episode 30:03
Download the RealTalk MS app for your iOS or Android device 30:24
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance
The Extracellular Matrix Proteins Tenascin-C and Tenascin-R Retard Oligodendrocyte Precursor Maturation and Myelin Regeneration in Cuprizone-Induced Long-Term Demyelination Animal Model
https://www.mdpi.com/2073-4409/11/11/1773/htm
Fatigue in Multiple Sclerosis: A UK MS-Register Based Study
https://sciencedirect.com/science/article/pii/S2211034822004655
Updated NICE Guidelines — Multiple Sclerosis in Adults: Management
https://nice.org.uk/guidance/ng220
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RealTalk MS Episode 253
Guest: Dr. Rosalind Kalb
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS