Whether we adults admit it or not, kids see everything. That includes seeing a parent or other family member who's living with MS. And because kids don't have an understanding of neurological conditions, they use their imaginations to fill in the blanks. That can very quickly take them down a rabbit-hole that's far scarier than the reality of living with MS. So, when do you talk to your kids about MS? And what do you say?
Licensed social worker and behavioral specialist Erin Martin joins me to discuss how, when, and what to talk about when you talk to your kids about your MS.
If you're living with MS and you still smoke, we're sharing results of a study that you may want to carefully consider.
We'll also share the results of two different studies that might help inform your COVID-19 strategy if you're on a b-cell depleting disease-modifying therapy.
We'll let you know how you can catch the video replay of an excellent webcast presented by the International Progressive MS Alliance.
We'll share the details about how a group of international experts discovered a method for measuring remyelinated MS lesions (And we'll tell you why that's become important right now)
We'll also share some encouraging results of a study that looked at the impact of estriol and Copaxone on women living with MS.
We have a lot to talk about! Are you ready for RealTalk MS??!
Talking to kids about MS :22
Smoking is shown to affect MS progression 1:29
COVID-19 vaccines, breakthrough infections, and Evusheld 3:44
Catch the video replay of the International Progressive MS Alliance Webinar 8:31
A team of international experts discover a way to measure myelin repair 9:08
Combination of Estriol plus Copaxone is shown to reduce neurofilament light chain levels 11:57
Behavioral specialist Erin Martin discusses talking about MS with your kids 14:27
Share this episode 29:03
Download the RealTalk MS app for your iOS or Android device 29:24
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance
STUDY: The Effect of Smoking on Long-Term Grey Matter Atrophy and Clinical Disability in Patients with Relapsing-Remitting Multiple Sclerosis
https://nn.neurology.org/content/9/5/e200008
STUDY: Tixagevimab and Cligavimab (Evusheld) Boost Antibody Levels to SARS-COV2 in Patients with Multiple Sclerosis on B-Cell Depleters
https://sciencedirect.com/science/article/pii/S2211034822004163
VIDEO: Solving the Mystery of Progression: The Key to New Treatments for Progressive MS
https://youtube.com/watch?v=U5sm54HSBpY
STUDY: A New Advanced MRI Biomarker for Remyelinated Lesions in Multiple Sclerosis
https://onlinelibrary.wiley.com/doi/10.1002/ana.26441
STUDY: Decreased Neurofilament Light Chain Levels in Estriol-Treated Multiple Sclerosis
https://onlinelibrary.wiley.com/doi/10.1002/acn3.51622
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RealTalk MS Episode 254
Guest: Erin Martin
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS