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Episode 342: Behind the Scenes of an MS Research Study with Chiquita Shepard-Knight and Earl Sneed


We often discuss the results of MS research studies on this podcast. In order to get to those results, people living with MS have to step up and volunteer to participate. This week, you'll meet Chiquita Shepard-Knight and Earl Sneed, two participants in the TEAAMS study.

Chiquita and Earl will discuss how they discovered the TEAAMS study, what motivated them to get involved, what their experience as study participants was like, and what the results of the study were for them.

We'll also take you to Capitol Hill as we share conversations that we had during Hill Day at the National MS Society's Public Policy Conference.

It's MS Awareness Month, and we're sharing new videos that feature interviews with leading MS experts along with the thoughts and reactions of people living with MS.

And we'll tell you where you can catch the video replay of the International Progressive MS Alliance's webcast on emerging treatments for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!


Tomorrow! The ACTRIMS Post-Forum Patient-Centered Webinar  :22

This Week: The patient perspective on participating in an MS research study  1:38

Live! From the Natinal MS Society's Public Policy Conference  2:28

People with MS weign in on the impact of several ECTRIMS presentations  10:17

Catch the video replay of the International Progressive MS Alliance webcast  11:35

Chiquita Shepard-Knight and Earl Sneed discuss their experience participating in the TEAAMS study   12:11

Share this episode  27:18

Have you downloaded the free RealTalk MS app?  27:38


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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

REGISTER: ACTRIMS Post-Forum Patient-Centered Webinar
https://fs2.formsite.com/1FItkk/tgx8tu3xg0/index

VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS
https://youtu.be/eWoZLF4bZmo

VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study
https://www.youtube.com/watch?v=UtGtCnNkYOY

VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of  managing their MS along with additional health conditions
https://www.youtube.com/watch?v=J83jlqMbsZo

VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience
https://www.youtube.com/watch?v=_fRLW69Xc1A

VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey
https://www.youtube.com/watch?v=oZDdp8JumFg

VIDEO: International Progressive MS Alliance Webcast Replay: Emerging Treatments for Progressive MS
https://www.youtube.com/watch?v=W4hxtl38MBQ

The TEAAMS Study
https://projectteaams.ahs.uic.edu

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

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RealTalk MS Episode 342
Guests: Chiquita Shepard-Knight and Earl Sneed

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