March 28th is Progressive MS Day, a day that offers an opportunity for people affected by MS, patient advocates, healthcare providers, governments, and industry to share stories online and show their support for people living with progressive forms of MS.
My wife, Jeanne, lived with progressive MS for 23 years, so this day holds a special significance for me. Joining me to talk about what Progressive MS Day is all about is my friend, Kevin Reid. Kevin was diagnosed with MS in 2002 and, for the past 10 years, he's been on a mission to crush MS.
As MS Awareness Month draws to a close, we're sharing a series of short videos featuring conversations I had with MS experts at the ECTRIMS congress. What makes this video series unique is that iConquer MS invited people living with MS to watch these videos. Then, I interviewed them to get their perspective on the topics the experts were discussing. It's the first time you'll not only hear from the experts, but you'll also get the thoughts and reactions of people who are living with MS.
We'll tell you about the neurostimulator that was just designated as a Breakthrough Device for promoting myelin repair.
We'll share the details of a newly announced Phase 2 clinical trial for a T-cell therapy for MS.
You'll hear about the study that identified a biomarker that reliably predicted the likelihood of future disease activity in people with MS.
And we'll tell you where you can catch the video replay of the 2024 ACTRIMS Forum Patient-Centered Webinars.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: March 28th is Progressive MS Day :22
Have you seen the series of short videos featuring my conversations with MS experts at ECTRIMS along with the thoughts and reactions from people living with MS? 1:00
Catch the video replay of the 2024 ACTRIMS Forum Patient-Centered Webinars 1:57
FDA designates neurostimulator as a breakthrough device for promoting myelin repair in people living with relapsing-remitting MS 2:46
Biotech company PolTREG announces Phase 2 clinical trials to test their Tregs treatment for MS 5:28
Study shows neurofilament light chain levels can reliably predict future disease activity 7:10
Kevin Reid discusses the importance of Progressive MS Day and gives us a preview of CRUSH MS 10:35
Share this episode 28:09
Have you downloaded the free RealTalk MS app? 28:29
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Email: jon@realtalkms.com
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS
https://youtu.be/eWoZLF4bZmo
VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study
https://www.youtube.com/watch?v=UtGtCnNkYOY
VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of managing their MS along with additional health conditions
https://www.youtube.com/watch?v=J83jlqMbsZo
VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience
https://www.youtube.com/watch?v=_fRLW69Xc1A
VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey
https://www.youtube.com/watch?v=oZDdp8JumFg
VIDEO: ACTRIMS Forum 2024 Webcast Replays
https://actrims.memberclicks.net/forum-patient-centered-webinars
STUDY: Prognostic Value of Serum Neurofilament Light Chain for Disease Activity and Worsening in Patients with Relapsing Remitting Multiple Sclerosis: Results from the Phase 3 ASCLEPIOS I and II Trials
https://pubmed.ncbi.nlm.nih.gov/35432382
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RealTalk MS Episode 343
Guest: Kevin Reid