More effective treatments and even cures for MS can only happen as a result of clinical research. And clinical research can only happen when people living with MS choose to become research participants. But what are the pros and cons that you should consider when you're thinking about participating in MS research?
The National MS Society's Associate Vice President of Research, Dr. Kathy Zackowski, returns to the podcast to discuss the risks and benefits of participating in clinical research. We're also joined by Mimi Brown, who lives with primary progressive MS. Mimi will share her experiences as a participant in several MS research studies.
We'll also remember Professor Giancarlo Comi, a true giant in the MS research community who passed away last week.
We'll discuss the updated Brain Health — Time Matters report.
We'll tell you about a research collaboration between the National MS Society, Breakthrough T1D (formerly the Juvenile Diabetes Research Foundation), and the Lupus Research Alliance.
And we're sharing the details about the International Progressive MS Alliance's upcoming global webcast.
We have a lot to talk about! Are you ready for RealTalk MS??!
Remembering Professor Giancarlo Comi :22
This Week: Participating in MS research 3:28
Experts release the Brain Health — Time Matters report 4:10
The National MS Society teams up with Breakthrough T1D and the Lupus Research Alliance to fund research in common mechanisms that drive autoimmunity 6:35
The International Progressive MS Alliance is hosting a global webcast on Dec. 11 9:27
Dr. Kathy Zackowski and Mimi Brown discuss the risks and benefits of participating in MS research 10:58
Share this episode 29:52
Have you downloaded the free RealTalk MS app? 30:11
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/379
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: jon@realtalkms.com
Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
REPORT: Brain Health — Time Matters
https://www.msbrainhealth.org/wp-content/uploads/2024/09/Brain-Health-Time-Matters-2024.pdf
VIDEO: Brain Health — Time Matters
https://www.msbrainhealth.org/launch-videos
Decoding Immunity: Common Mechanisms of Autoimmunity
https://decodingautoimmunity.org
REGISTER FOR THE WEBCAST: What We're Learning from Clinical Trials
https://www.msif.org/webcast-clinical-trials
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review
http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 379
Guests: Dr. Kathy Zackowski and Mimi Brown