Past Podcast Episodes

175 MS activists are heading to Washington, D.C. next week for the National MS Society's Public Policy Conference. Their mission: to bring the concerns of the MS community directly to lawmakers on Capitol Hill.

Steffany Stern

When it comes to the legislative support for healthcare and medical research, it's no secret that these are unusual times. Joining me to brief us on the National MS Society's ongoing advocacy efforts and give us a sneak peek at the specific legislative issues we'll be taking to Capitol Hill is the National MS Society's Vice President of Advocacy, Steffany Stern.

We'll also share updated results from an important study that show the risk of developing MS if a close relative is living with the disease is significantly higher than researchers originally thought.

And we'll give you all the details of a Phase 1 clinical trial that's focused on a novel approach to CAR-T cell therapy for MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Preparing for the MS Society's Public Policy Conference :22

I'm asking for your support: 1:37

An update to a 2015 study shows close relatives of people living with MS are 100 times more likely than the general population to develop MS 2:15

A novel approach to CAR-T cell therapy for MS is recruiting for a Phase 1 clinical trial 4:26

Steffany Stern, the Vice President of Research at the National MS Society, shares a major advocacy win and previews next week's Public Policy Conference in Washington, D.C. 7:27

Share this episode 33:04

Next week 33:25

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https://nationalmssociety.org/advocacy

STUDY: A Prospective Study of Individuals at Risk of Multiple Sclerosis Informs the Design of Primary Prevention Studies
https://onlinelibrary.wiley.com/doi/10.1002/acn3.70340

GEMS Study Recruitment
https:/nationalmssociety.org/news-and-magazine/news/ms-study-alert-gems

RealTalk MS Ep. 439: Preventing MS with Dr. Bruce Bebo
https://realtalkms.com/439

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https://clinicaltrials.gov/study/NCT06680037/#contacts-and-locations

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RealTalk MS Episode 446
Guests: Steffany Stern

Privacy Policy

It's MS Awareness Week, and this year we're diving into a theme that hits home for millions: Unseen MS. Multiple sclerosis is a master of disguise; it can be entirely invisible to the naked eye while remaining profoundly life-altering for the person living it.

In this episode, we're exploring the spectrum of the MS experience through two distinct, yet deeply connected stories.

Kristine and the 3 Kims

First, you'll hear from RealTalk MS team member Kristine Werner Ozug. Kristine shares what it's like to navigate a world that doesn't always see her struggle, and how her “mostly invisible” MS symptoms still dictate the rhythm of her daily life.

Then, you'll meet the two Kims (and a third). Kim W and Kim P, have been together for 16 years. They both live with MS—but in very different ways. While Kim P has navigated RRMS for 18 years with largely invisible symptoms, Kim W was diagnosed with PPMS just three years ago and faces much more visible physical challenges.

Joining our conversation with Kim and Kim is Kim Fredsall, a physical therapist at Gaylord Specialty Healthcare, who provides expert context on bridging the gap between diagnosis and daily management.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: It's MS Awareness Week :22

Kristine Werner Ozug shares her story 1:24

Kim W. and Kim P. share their story 24:49

Share this episode 39:14

Next week 39:34