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Past Podcast Episodes

Episode 471: Navigating an MS Relapse with Dr. F. Gabriela Karolidis


Relapses make life with MS unpredictable. Understanding what they are, why they happen, and how best to manage them can make a relapse less scary and easier to navigate.

This week, Dr. Gabriela Karolidis, a board-certified neurologist and neuroimmunologist at Thomas Jefferson University, joins us for a deep dive into MS relapses.

Dr. Gabriela Karolidis

We'll also share a study showing how wearable activity trackers add a dimension of real-world data that provides a more complete picture of an individual's mobility throughout the day.

We'll tell you about research on Vitamin D supplements that fails to determine whether they are beneficial for people living with MS.

We're sharing study results showing that social and socioeconomic factors clearly affect cognitive function among people living with MS.

We're also sharing results from a nationwide study in Denmark that focused on whether high-efficacy DMTs affect progression independent of relapse activity (PIRA).

And we'll tell you about a fall prevention study that you may be eligible to participate in (compensation provided!).

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Navigating a relapse  :22

Global MS prevalence surpasses 3 million   :57

A study shows that wearable activity trackers help create a more complete picture of an individual's mobility   6:38

Researchers attempt to determine whether Vitamin D supplements help people living with MS   10:14

A study provides evidence that social and socioeconomic factors impact cognitive function in people living with MS  13:58

A nationwide study in Denmark focuses on whether high-efficacy disease-modifying therapies have an impact on progression independent of relapse activity (PIRA)  17:20

You may be eligible to participate in a fall prevention study (compensation is provided)  21:11

Dr. F. Gabriela Karolidis takes us on a deep dive into MS relapses  22:58

Share this episode  37:52

Next week  38:12


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/471

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com

STUDY: Global Prevalence of Multiple Sclerosis Surpasses 3 Million: 2024 Update of the Multiple Sclerosis International Federation Atlas of MS
https://journals.sagepub.com/doi/10.1177/13524585261479954

RESOURCE: Multiple Sclerosis International Federation Atlas of MS
https://msif.org/atlas

STUDY: Diurnal Step Count Patterns in Progressive Multiple Sclerosis
https://journals.sagepub.com/doi/10.1177/13524585261475910

STUDY: Vitamin D Supplementation and Its Effect on Relapse Frequency and MRI Activity in Adults With Multiple Sclerosis: A Systematic Review
https://onlinelibrary.wiley.com/doi/10.1002/brb3.71692

STUDY: Social and Socioeconomic Factors and Cognitive Outcomes in Multiple Sclerosis
https://sciencedirect.com/science/article/pii/S221103482600475X

STUDY: Effectiveness of Escalation Versus Early High-Efficacy Therapies on Progression Independent of Relapse Activity In Multiple Sclerosis: A Danish Nationwide Study
https://neurologyopen.bmj.com/content/8/2/e001690

PARTICIPATE: University of Illinois Disability, Participation, and Quality of Life Research Laboratory Fall Prevention Study
Email: DPQoL-FallPrev@illinois.edu

REGISTER: ECTRIMS Patient Community Day
https://ectrimspatientcommunity.eu

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

REVIEW: Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on X, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 471
Guest: Dr. Gabriela Karolidis

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Filed Under: Uncategorized

Episode 470: 42 Marathons in 42 Days with Benji Wilkins


Wise men and women remind us that life is a marathon, and not a sprint. Joining us this week is Benji Wilkins. Benji is a magician in the U.K., and for 42 days this summer, his life was quite literally a marathon. In the process, Benji raised money to help his mom, who lives with MS, and he raised awareness of MS across the U.K. and around the world.

Benji Wilkins

We're also sharing results of a study that focused on gait training using a powered exoskeleton for people living with MS.

We'll tell you how you can participate in the MOMENT-MS study and help researchers develop a smartphone app that takes a novel approach to managing MS-related pain.

And we're reminding you to register for ECTRIMS Patient Community Day. It's your opportunity to participate in the largest MS research conference in the world!

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Running a marathon a day (when you're not a runner) for MS  :22

Cleveland Clinic researchers look at gait training using a powered exoskeleton for people with MS  1:02

University of Washington researchers are developing an app to manage MS pain using mindfulness-based cognitive therapy. And you can help them!   6:53

Sign up to participate in the largest MS research conference in the world   5:27

Benji Wilkins describes what it's like to run 42 marathons in 42 days on behalf of his mom, who lives with MS  6:53 

Share this episode  29:01

Next week  29:20


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/470

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes at www.RealTalkMS.com

STUDY: Feasibility and Outcomes of Gait Training With a Powered Exoskeleton in Individuals With Multiple Sclerosis
https://pubmed.ncbi.nlm.nih.gov/40465831

SUPPORT: Marathons For Mum
Web: https://marathonsformum.com
Instagram: https://instagram.com/benjitwilkins

PARTICIPATE: MOMENT-MS Study
Web:   https://uwmsrehabwell.org/moment-ms
Email: momentms@uw.edu
Video: https://www.youtube.com/watch?v=Z6TA5-9dy7s

REGISTER: ECTRIMS Patient Community Day
https://ectrimspatientcommunity.eu

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

REVIEW: Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on X, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 470
Guest: Benji Wilkins

Privacy Policy

Filed Under: Uncategorized

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