Research shows that members of minority communities often experience MS differently. And by differently, we mean worse. — more severe symptoms, shorter time to disability, and greater levels of disability. That's why ensuring greater diversity in clinical research is of urgent importance.
At the same time, the conversation about putting the patient at the center of MS research has grown louder and more pronounced.
Major pharmaceutical companies have gotten both of these messages and joining me to talk about increasing diversity and ensuring patient-centricity in MS clinical research is Tanja Keiper, Director in the Clinical Delivery Unit of EMD Serono.
We'll also update you on the progress that MS activists are making as our key legislative issues work their way through Congress.
We'll tell you about an interesting study about stress triggers and the stress coping mechanisms most often used by people living with MS.
We're talking about a smartphone app that, one day, might provide your neurologist with a digital biomarker of MS-related cognitive changes.
And we'll share the details of a powerful new supercomputer that's busy studying multiple sclerosis so that it can create brand new MS therapies.
We have a lot to talk about! Are you ready for RealTalk MS??!
MS advocacy update :22
Study looks at stress triggers and stress coping mechanisms among people living with MS 5:52
A smartphone app to measure MS-related cognitive changes 9:20
A powerful new supercomputer is trying to figure out MS 11:41
Tanja Keiper talks about how EMD Serono is working to increase diversity and ensure patient-centricity in MS clinical research 14:29
Share this episode 27:04
Download the free RealTalk MS app for your iOS or Android device 27:25
SHARE THIS EPISODE OF REALTALK MS
Just copy this link & paste it into your text or email: https://realtalkms.com/204
ADD YOUR VOICE TO THE CONVERSATION
I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: jon@realtalkms.com
Phone: (310) 526-2283
And don't forget to join us in the RealTalk MS Facebook group!
LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance
STUDY: The Role of Stress Perception and Coping with Stress and the Quality of Life Among Multiple Sclerosis Patients
https://www.dovepress.com/the-role-of-stress-perception-and-coping-with-stress-and-the-quality-o-peer-reviewed-fulltext-article-PRBM
STUDY: Reliability, Construct, and Concurrent Validity of a Smartphone-Based Cognition Test in Multiple Sclerosis
https://journals.sagepub.com/doi/10.1177/13524585211018103
evolutionRMS Studies
https://www.evolutionstudies.com
https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS
https://itunes.apple.com/us/app/realtalk-ms/id1436917200
Download the RealTalk MS App for Android
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
Give RealTalk MS a rating and review
http://www.realtalkms.com/review
Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.
RealTalk MS Episode 204
Guest: Tanja Keiper
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, EMDSerono, RealTalkMS