Joining me to discuss the impact of the outrageously high cost of MS medications — and what each of us can do about it — is the National MS Society's Vice-President of Advocacy, Steffany Stern.
We're also talking about a Phase 1 clinical trial for an investigational Epstein-Barr Virus vaccine (and why that matters to everyone living with MS).
We'll tell you about a study that may have identified a biomarker for MS-related fatigue.
We're also sharing the results of a study that identified which stress-reducing activities can help reduce MS-related depression and fatigue.
And we'll tell you about a study that identified the economic benefits of starting MS medications early.
We have a lot to talk about! Are you ready for RealTalk MS??!
The (HIGH!) Cost of MS Medications :22
NIH Announces Phase I Clinical Trial of Investigational EBV Vaccine 4:21
Study identifies a potential biomarker for MS fatigue 6:04
Study identifies stress-reducing activities that lower MS-related depression and fatigue 8:37
Study shows the economic benefits of starting MS medications early 11:25
Steffany Stern discusses the impact of the cost of MS medications 14:16
Share this episode 32:10
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance
National MS Society: You Can Help Bring MS Medications Into Reach
https://nationalmssociety.org/Treating-MS/Medications/Make-MS-Medications-Accessible/Take-Action
RealTalk MS Ep.229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi
https://realtalkms.com/229
RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding this Breakthrough Research with Dr. Bruce Bebo
https://realtalkms.com/231
Cerebrospinal Fluid Amyloid Precursor Protein as a Potential Biomarker for Fatigue in Multiple Sclerosis: A Pilot Study
https://sciencedirect.com/science/article/pii/S2211034822003583
SURVEY: Undertaking Specific Stress-Reducing Activities are Associated with Reduced Fatigue and Depression, And Increased Mastery, in People with Multiple Sclerosis
https://sciencedirect.com/science/article/pii/S2211034822003169
Early vs Late Treatment Initiation in Multiple Sclerosis and Its Impact on Cost of Illness: A Register-Based Prospective Cohort Study in Sweden
https://pubmed.ncbi.nlm.nih.gov/35496759
iConquer MS Survey for MS Caregivers
https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers
iConquer MS Survey for Researchers and Healthcare Providers
https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers
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RealTalk MS Episode 246
Guests: Steffany Stern
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS