Some disease-modifying therapies can change the trajectory of your MS journey. But gaining access to those medications isn't always as easy or straightforward as it should be. In the United States, insurance companies are most often the gatekeepers to prescription medications.
This week, Cassandra Ashby shares a story that many of you may already be too familiar with, as she takes us through her family's long, hard, and confusing struggle to get the DMT that her newly-diagnosed daughter's neurologist prescribed. I
We're also talking about the game-changing results of a study that demonstrate MS-related damage to the brain occurs years before the very first symptom becomes apparent. And we're explaining why this opens the door to treatment that may stop MS symptoms from even developing.
We're giving you a heads-up about changes to the way health records for MS patients are being coded, and how these changes are already creating obstacles to accessing the disease-modifying therapy that you may have been taking for months or years.
And we're reminding you that you still have time to register to participate virtually in tomorrow's historic meeting between people with MS and the FDA
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: The sometimes overwhelming challenge of gaining access to the disease-modifying therapy that's been prescribed by your MS Specialist :22
Study results demonstrate MS-related brain damage occurs years before MS symptoms 1:22
What are ICD-10 codes, and why do the latest changes to these codes pose potential challenges for people living with MS? 5:52
You can participate virtually in tomorrow's meeting between people with MS and the FDA 9:23
Cassandra Ashby shares her family's long, hard, and confusing struggle with their insurance company 10:56
Share this episode 31:06
Next week's episode 31:26
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA
https://nmss.quorum.us/event/25463
SIGN UP: Become an MS Activist
https://nationalmssociety.org/advocacy
STUDY: Myelin Injury Precedes Axonal Injury and Symptomatic Onset in Multiple Sclerosis
https://nature.com/articles/s41591-025-04014-w
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https://realtalkms.com/ectrims2025
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RealTalk MS Episode 426
Guests: Cassandra Ashby