I spent this past weekend attending the iConquer MS Leadership Summit in Boston. iConquer MS is a people-powered research network created by the Accelerated Cure Project for MS. Instead of just asking people with MS to provide data, iConquer MS is driven by people living with MS, and it represents a new paradigm of building collaborative partnerships to solve big healthcare questions.
This past spring, I had an in-depth conversation with Dr. Robert McBurney, CEO of the Accelerated Cure Project for MS, and David Gwynne, who heads up their Alliances & Collaborations. We'll revisit that conversation, and I'll also give you my thoughts on the remarkable iConquer MS Leadership Summit.
We're also talking about the shocking decision in the UK to withhold Ocrevus as a treatment for Primary Progressive MS, the MS In America 2017 survey results, and I'll tell you about a couple of excellent webinars that you should be sure to check out.
We have a lot to talk about! Are you ready for RealTalk MS?
NICE Rejects Ocrevus for PPMS in the UK 1:06
MS In America Survey Results Provide Surprising Insights 4:20
Upcoming Webinars from Can-Do MS 7:40
iConquer MS Leadership Summit 9:49
Interview with Dr. Robert McBurney & David Gwynne 13:09
If your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com
Petition to Make Ocrevus Available for People with PPMS in the UK
Relapse Prevalence, Symptoms, and Health Care Engagement: Patient Insights from the Multiple Sclerosis in America 2017 Survey
Accelerated Cure Project for MS
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RealTalk MS Episode 53
Hosted By: Jon Strum
Guests: Dr. Robert McBurney & David Gwynne
Tags: MS, MultipleSclerosis, Ocrevus, iConquerMS, CanDoMS, RealTalkMS