Most people living with MS don't see their neurologist often. For many, it might be only once or twice a year. A lot of important things take place during that appointment. Symptoms are assessed. Decisions about disease-modifying therapies are made or, sometimes, changed. Questions get asked and, hopefully, answered.
Dr. Barbara Giesser returns to the podcast, this time, to review the things that should be discussed and followed up on at your appointment with your neurologist or MS specialist.
We're also sharing some good news about MS research funding from the National MS Society and the International Progressive MS Alliance.
We'll tell you how you can catch the replay of the International Progressive MS Alliance's webcast focused on putting people with MS at the center of MS research.
We're sharing the encouraging outcome of the Phase 2 clinical trial for vidofludimus calcium and progressive MS.
We'll tell you how you or a family member can participate in the GEMS study.
And we'll tell you about a new AI tool that can accurately diagnose a patient's transition from relapsing-remitting MS to secondary progressive MS, often before a clinician can!
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: What (should) happen during your appointment with your neurologist :22
National MS Society invests $18.1 million in new research 1:04
International Progressive MS Alliance funds 3 clinical trial development projects 3:53
Catch the replay of the International Progressive MS Alliance webcast focused on putting people with MS at the center of research 6:56
Immunic Therapeutics announces positive results from the Phase 2 clinical trial evaluating vidofludimus calcium for progressive MS 7:45
You or a family member may qualify to participate in the GEMS study 10:00
AI tool can accurately diagnose the transition from relapsing-remitting MS to secondary progressive MS 12:01
Dr. Barbara Giesser discusses the kinds of conversations you should be having during your appointment with your neurologist 16:49
Share this episode 30:38
Have you downloaded the free RealTalk MS app? 31:00
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Become an MS Activist
Web: https://nationalmssociety.org/advocacy
Email: msactivist@nmss.org
National MS Society Commits $18.1 Million for Research (Projects Being Funded)
https://cdn.sanity.io/files/y936aps5/production/a788b2e3d8409173a4de417fcf3bebcfbddddc41.pdf
International Progressive MS Alliance
https://progressivemsalliance.org
International Progressive MS Alliance Webcast: Putting People with MS at the Center of Research
https://youtube.com/watch?v=uacSJ7ZxuRM
Participate in MS Research: The GEMS Study
https://recruit.cumc.columbia.edu/studyinfopage/1419
GEMS Study Contact: Juliana Oyegunle
Email: gems_neuro@cumc.columbia.edu
Phone: (212) 305-2434
STUDY: Conformal Prediction Enables Disease Course Prediction And Allows Individualized Diagnostic Uncertainty in Multiple Sclerosis
https://www.nature.com/articles/s41746-025-01616-z
Multiple Sclerosis Progression Tracker
https://msp-tracker.serve.scilifelab.se/
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms
Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200
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https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk
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RealTalk MS Episode 401
Guests: Dr. Barbara Giesser
