Past Podcast Episodes

Whether we adults admit it or not, kids see everything. That includes seeing a parent or other family member who's living with MS. And because kids don't have an understanding of neurological conditions, they use their imaginations to fill in the blanks. That can very quickly take them down a rabbit-hole that's far scarier than the reality of living with MS. So, when do you talk to your kids about MS? And what do you say?

Licensed social worker and behavioral specialist Erin Martin joins me to discuss how, when, and what to talk about when you talk to your kids about your MS.

If you're living with MS and you still smoke, we're sharing results of a study that you may want to carefully consider.

We'll also share the results of two different studies that might help inform your COVID-19 strategy if you're on a b-cell depleting disease-modifying therapy.

We'll let you know how you can catch the video replay of an excellent webcast presented by the International Progressive MS Alliance.

We'll share the details about how a group of international experts discovered a method for measuring remyelinated MS lesions (And we'll tell you why that's become important right now)

We'll also share some encouraging results of a study that looked at the impact of estriol and Copaxone on women living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Talking to kids about MS :22

Smoking is shown to affect MS progression 1:29

COVID-19 vaccines, breakthrough infections, and Evusheld 3:44

Catch the video replay of the International Progressive MS Alliance Webinar 8:31

A team of international experts discover a way to measure myelin repair 9:08

Combination of Estriol plus Copaxone is shown to reduce neurofilament light chain levels 11:57

Behavioral specialist Erin Martin discusses talking about MS with your kids 14:27

Share this episode 29:03

Download the RealTalk MS app for your iOS or Android device 29:24

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/254

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: The Effect of Smoking on Long-Term Grey Matter Atrophy and Clinical Disability in Patients with Relapsing-Remitting Multiple Sclerosis
https://nn.neurology.org/content/9/5/e200008

STUDY: Tixagevimab and Cligavimab (Evusheld) Boost Antibody Levels to SARS-COV2 in Patients with Multiple Sclerosis on B-Cell Depleters
https://sciencedirect.com/science/article/pii/S2211034822004163

VIDEO: Solving the Mystery of Progression: The Key to New Treatments for Progressive MS
https://youtube.com/watch?v=U5sm54HSBpY

STUDY: A New Advanced MRI Biomarker for Remyelinated Lesions in Multiple Sclerosis
https://onlinelibrary.wiley.com/doi/10.1002/ana.26441

STUDY: Decreased Neurofilament Light Chain Levels in Estriol-Treated Multiple Sclerosis
https://onlinelibrary.wiley.com/doi/10.1002/acn3.51622

Join the RealTalk MS Facebook Group
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RealTalk MS Episode 254
Guest: Erin Martin

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Everybody remembers the day — sometimes, even the moment — when they were diagnosed with MS. And in that moment, you may not have known very much about living with MS, but you probably felt like everything was about to change.

One of the most common emotional responses to MS is grief. Joining me to talk about the relationship between grief and MS, as well as share some specific steps and strategies that you can take to process and manage grief in a healthy way is clinical psychologist Dr. Rosalind Kalb.

Dr. Kalb has specialized in MS care and education for almost 40 years. She's a past Vice-President of the Professional Resource Center at the National MS Society. And currently, Dr. Kalb is the Senior Programs Consultant for Can Do MS.

We'll also share the details of the experiments conducted by two German scientists that may shed important light on the process of myelin repair.

We'll tell you what a research team learned from the largest MS fatigue study ever conducted in the United Kingdom.

We'll highlight some of the changes to the updated guidelines for diagnosing and treating MS in the U.K.

And we'll share the results of an extension study of Kesimpta presented last week at the annual meeting of the European Academy of Neurology.

We have a lot to talk about! Are you ready for RealTalk MS??!

Grief and MS :22

Scientists may have discovered two proteins that stop myelin repair 1:26

Researchers share results of the largest MS fatigue study in the U.K. 3:39

Updated guidelines for diagnosing and treating MS in the U.K. 6:31

Kesimpta extension study participants show no evidence of disease activity after 4 years 8:57

Dr. Rosalind Kalb discusses grief and MS 11:42

Share this episode 30:03

Download the RealTalk MS app for your iOS or Android device 30:24

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/253

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

The Extracellular Matrix Proteins Tenascin-C and Tenascin-R Retard Oligodendrocyte Precursor Maturation and Myelin Regeneration in Cuprizone-Induced Long-Term Demyelination Animal Model
https://www.mdpi.com/2073-4409/11/11/1773/htm

Fatigue in Multiple Sclerosis: A UK MS-Register Based Study
https://sciencedirect.com/science/article/pii/S2211034822004655

Updated NICE Guidelines — Multiple Sclerosis in Adults: Management
https://nice.org.uk/guidance/ng220