Past Podcast Episodes

Episode 367: Budgeting for Living with MS with Bruce McClary

Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year. Even with insurance, that can turn out to be a heavy lift.

One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing budgeting and managing your personal finances when you're living with MS, I think we're really talking about preserving your quality of life.

Bruce McClary

Joining me with strategies for budgeting and managing debt when you're living with MS is the Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary.

We'll also tell you about the updated Pathways to Cures Research Roadmap and the first ever global landscape analysis of MS research funding.

We're sharing very encouraging results from the Phase 2 open-label extension study of Fenebrutinib, an experimental BTK inhibitor.

We'll give you the details of a pilot study that demonstrated what may be a successful treatment for sexual dysfunction among men and women living with MS.

We'll tell you why middle-aged people with MS may want to consider resistance training.

And we'll tell you how to register for the National MS Society's Voting Without Barriers webinar.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Budgeting for Living with MS :22

The Pathways to Cures Research Roadmap has been updated and refined 1:25

There's very encouraging news from the Phase 2 open-lable extension study of Fenebrutinib 5;31

Results from a pilot study point to successful treatment for sexual dysfunction among men and women living with MS 6:35

Study results show that resistance training is beneficial for middle-aged people with MS 9:52

We're 8 weeks away from election day in the U.S. and the National MS Society is hosting a webinar about access to polling places 11:36

Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary, shares tips and strategies for taming your household budget and budgeting for living with MS 15:49

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Email: jon@realtalkms.com
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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1)
https://realtalkms.com/297

RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2)
https://realtalkms.com/298

The Refined Pathways To Cures Research Roadmap
https://journals.sagepub.com/doi/10.1177/13524585241266483

The First Global Landscape Analysis of Multiple Sclerosis Research Funding
https://journals.sagepub.com/doi/full/10.1177/13524585241265961

STUDY: Tibial Nerve Stimulation in the Management of Primary Sexual Dysfunction in Patients with Multiple Sclerosis: A Pilot Randomized Control Trial
https://link.springer.com/article/10.1007/s10072-024-07687-2

STUDY: Is Resistance Training an Option to Improve Functionality and Muscle Strength In Middle-Aged People with Multiple Sclerosis? A Systematic Review and Meta-Analysis
https://www.mdpi.com/2077-0383/13/5/1378

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RealTalk MS Episode 367
Guest: Bruce McClary

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Episode 366: Medicare and MS — Getting Your Ducks In a Row with Laquel Thomas

Most of us know Medicare as health insurance for Americans who are 65 or older, but when they qualify for Social Security disability benefits, people younger than 65 automatically qualify for Medicare. Today, between 25 and 30% of the people living with MS are Medicare beneficiaries.

Whether you already have Medicare or you'll be signing up for Medicare in the future, getting the right coverage requires making some important choices.

Medicare card

Licensed Medicare Advisor Laquel Thomas joins me with tips, strategies, and explanations for successfully navigating Medicare and getting the coverage you need.

We're explaining the good news in the results from a Phase 3 clinical trial for Tolebrutinib, Sanofi's experimental oral BTK inhibitor. The trial showed that, compared to placebo, Tolebrutinib met the primary endpoint, delaying the onset of confirmed disability progression in people with non-relapsing secondary progressive MS.

Take My Hand is an Australian film based on the true story of Claire Jensz, a mother of three living in London who is diagnosed with MS at the peak of her high-powered career. Be sure to catch my conversation with Claire, Radha Mitchell, the film's star, and John Raftopoulos, the film's director.

We're sharing the details of a study that may have uncovered an underlying cause of MS and, perhaps, all autoimmune diseases.

We'll tell you about the results of a stem cell study that show MS may involve more than just immune cells.

And we'll give you what may be surprising details of a study that focused on how MS impacts the quality of life of fully ambulatory people living with mild MS symptoms.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Making the right Medicare choices :22

There's good news about the results of the Phase 3 clinical trial for Tolebrutinib 1:41

My conversation with the director, star, and woman whose story about living with MS is the real-life basis for the new film, Take My Hand 4:28

Have researchers at Yale discovered an underlying cause of MS? 14:11

Newly published results of a stem cell study show that MS may also be driven by brain cells 17:19

Study results show how MS impacts the quality of life among fully ambulatory people with mild MS symptoms 19:15

Licensed Medicare Advisor, Laquel Thomas, explains all the variables you want to consider in making choices about your Medicare coverage 22:12

Share this episode 33:40

Have you downloaded the free RealTalk MS app? 34:01

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/366

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

TRAILER: Take My Hand
https://youtu.be/PdNMb7-AeEs

STUDY: An Autoimmune Transcriptional Circuit Drives FOXP3+ Regulatory T-Cell Dysfunction
https://www.science.org/doi/10.1126/scitranslmed.adp1720

STUDY: Patient iPSC Models Reveal Glia-Intrinsic Phenotypes in Multiple Sclerosis
https://www.sciencedirect.com/science/article/abs/pii/S1934590924002881

STUDY: Determinants of Self-Perceived Quality of Life in Mildly Disabled Multiple Sclerosis Patients: A Cross-Sectional Study
https://pubmed.ncbi.nlm.nih.gov/38526763