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Episode 204: Creating Greater Diversity and Ensuring Patient-Centricity in MS Clinical Research with Tanja Keiper


Research shows that members of minority communities often experience MS differently. And by differently, we mean worse. — more severe symptoms, shorter time to disability, and greater levels of disability. That's why ensuring greater diversity in clinical research is of urgent importance.

At the same time, the conversation about putting the patient at the center of MS research has grown louder and more pronounced.

Tanja Keiper

Major pharmaceutical companies have gotten both of these messages and joining me to talk about increasing diversity and ensuring patient-centricity in MS clinical research is Tanja Keiper, Director in the Clinical Delivery Unit of EMD Serono.

We'll also update you on the progress that MS activists are making as our key legislative issues work their way through Congress.

We'll tell you about an interesting study about stress triggers and the stress coping mechanisms most often used by people living with MS.

We're talking about a smartphone app that, one day, might provide your neurologist with a digital biomarker of MS-related cognitive changes.

And we'll share the details of a powerful new supercomputer that's busy studying multiple sclerosis so that it can create brand new MS therapies.

We have a lot to talk about! Are you ready for RealTalk MS??!


MS advocacy update  :22

Study looks at stress triggers and stress coping mechanisms among people living with MS   5:52

A smartphone app to measure MS-related cognitive changes  9:20

A powerful new supercomputer is trying to figure out MS  11:41

Tanja Keiper talks about how EMD Serono is working to increase diversity and ensure patient-centricity in MS clinical research  14:29

Share this episode  27:04

Download the free RealTalk MS app for your iOS or Android device  27:25


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/204


ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: The Role of Stress Perception and Coping with Stress and the Quality of Life Among Multiple Sclerosis Patients
https://www.dovepress.com/the-role-of-stress-perception-and-coping-with-stress-and-the-quality-o-peer-reviewed-fulltext-article-PRBM

STUDY: Reliability, Construct, and Concurrent Validity of a Smartphone-Based Cognition Test in Multiple Sclerosis
https://journals.sagepub.com/doi/10.1177/13524585211018103

evolutionRMS Studies
https://www.evolutionstudies.com

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 204
Guest: Tanja Keiper

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, EMDSerono, RealTalkMS

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Episode 203: How To Enjoy Summer Activities While Staying Safe and Keeping Cool with Dr. Colin Lenington

Summertime traditionally means getting out of the house, enjoying outdoor activities, and being active. But if you're living with MS, outdoor activity and summertime temperatures can raise red flags when it comes to your day-to-day quality of life.

Dr. Colin Lenington

My guest is Dr. Colin Lenington, an Occupational Therapist and Clinical Specialist at the VA Long Beach Healthcare System and we're talking about getting outside, staying safe, and keeping cool while you enjoy your summer activities.

We're joining the World Federation of Neurology and the global MS community on July 22nd, to celebrate World Brain Day 2021. This year's theme is Stop Multiple Sclerosis and we'll tell you where and how to register for the upcoming World Brain Day webinar.

We're also talking about study results that show the impact of delaying an Ocrevus infusion in order to enhance the effect of a COVID-19 vaccination.

We'll tell you about a study in the U.K. that followed 120 people with MS who received autologous hematopoietic stem cell transplantation (aHSCT).

We'll share news about a new way to successfully cross the blood-brain barrier and deliver medicines to the central nervous system. (And we'll explain why that matters when it comes to treating MS)

And we'll tell you about a study of veterans with MS that should convince anyone to adhere to their DMT treatment plan.

We have a lot to talk about! Are you ready for RealTalk MS??!


July 22nd is World Brain Day!  :22

My live conversation with Dr. Victoria Leavitt takes place this Wednesday, on the eSupport Health Wednesday Workshop   :55

Study shows the effect of extended interval dosing of Ocrevus  2:46

Study shows real-world outcomes for 120 people with MS who received aHSCT  5:49

Biopharmaceutical company successfully delivers an anti-inflammatory molecule across the blood-brain barrier  7:43

Study shows the benefits of adhering to DMTs  9:03

Dr. Colin Lenington talks about how to enjoy summertime activities while staying safe and staying cool  11:24

Share this episode  24:25

Catch my live conversation with Dr. Victoria Leavitt on Wednesday  24:48


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/203


ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

World Brain Day 2021
https://wfneurology.org/world-brain-day-2021

Register for the eSupport Health Wednesday Workshop:
A Conversation with Jon Strum
https://esupporthealth.zoom.us/meeting/register/tJEpc–rqT0vHdJ6FbPDH7S1enOrLYAIQG-K

STUDY: Ocrelizumab Extended Interval Dosing in Multiple Sclerosis in Times of COVID-19
https://nn.neurology.org/content/8/5/e1035

STUDY: Autologous Haematopoietic Stem Cell Transplantation in Active Multiple Sclerosis: A Real-World Case Series
https://n.neurology.org/content/early/2021/07/12/WNL.0000000000012449

Bioasis Announces Positive Results from Efficacy Study of xB3TM -1L-1RA in a Model of Multiple Sclerosis
https://www.globenewswire.com/news-release/2021/07/07/2259430/0/en/Bioasis-Announces-Positive-Results-From-an-Efficacy-Study-of-xB3-IL-1RA-in-a-Model-of-Multiple-Sclerosis.html

STUDY: The Impact of Adherence to Disease-Modifying Therapies on Functional Outcomes in Veterans with Multiple Sclerosis
https://journals.sagepub.com/doi/pdf/10.1177/11795735211028769

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 203
Guest: Dr. Colin Lenington

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Filed Under: Uncategorized

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