Past Podcast Episodes

We're celebrating the 200th episode of RealTalk MS by sitting down with Cyndi Zagieboylo, the President and CEO of the National Multiple Sclerosis Society, and looking at some of the most vital initiatives ever undertaken by the National MS Society, including the launch of the International Progressive MS Alliance, the MS Society's efforts to support diversity, equity, and inclusion throughout the MS movement and in MS clinical research, and the groundbreaking Pathways to Cures blueprint.

Cyndi Zagieboylo

Over the span of her 36-year career with the National MS Society, Cyndi had the opportunity to work with the Society's founder, Sylvia Lawry. During our conversation, we look back at the founding of the National MS Society in 1948, Ms. Lawry's founding of the MS International Federation in 1967, and Cyndi shares her insights into what might have been on Ms. Lawry's mind if she were with us today.

We have a lot to talk about! Are you ready for RealTalk MS??!

Welcome to Episode #200! :18

A toast to each of you who have made this possible :58

My conversation with Cyndi Zagieboylo 2:57

Share this episode 31:42

Thanks again! 32:02

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/200

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 200
Guests: Cyndi Zagieboylo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Receiving an MS diagnosis can be frightening. And receiving that diagnosis as a young adult can feel like your whole world just got flipped upside down. When Matoaka Kipp (she/her/hers) received her MS diagnosis at the age of 21, she not only had to come to terms with how that diagnosis would change her life but as a member of the LGBTQ+ community, Matoaka also had to confront some of the systemic inequities of our healthcare system.

Matoaka joins me this week to share her MS journey.

Matoaka Kipp

We're also talking about why the U.S. Supreme Court tossed out a lawsuit that threatened access to healthcare for every person living with MS in the United States.

We'll tell you who was just named this year's recipient of the prestigious Charcot Award and you'll learn how this person's work has directly affected your MS diagnosis.

We're sharing the surprising results of a study of cannabis use and cognition among people with MS.

And we'll tell you about a $1 million dollar award that will fund no-cost outdoor adventures (think adaptive skiing, kayaking, etc!) for young adults who are living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

National MS Society's statement in support of the LGBTQ+ community :22

U.S. Supreme Court Tosses Out ACA Lawsuit (and why that matters to everyone living with MS) 3:26

Winner of the Charcot Award is announced 7:14

Surprising results from a study on cannabis and cognition among people with MS 10:07

If you're living in the U.K. and you use a wheelchair for mobility, here's your chance to be a part of MS research 14:07

First Descents receives $1 million dollars to support no-cost outdoor adventures for young adults living with MS 15:04

Matoaka Kipp shares her MS journey 17:30

Share this episode 40:41

Please join me next week for our 200th episode! 41:03

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/199

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society LGBTQ+ Needs Survey
https://ntlms.org/LGBTQSurvey

Matoaka's Greeting Cards
https://www.instagram.com/habibimail

STUDY: Impaired Awareness: Why People with Multiple Sclerosis Continue Using Cannabis Despite Evidence to the Contrary
https://onlinelibrary.wiley.com/doi/10.1002/brb3.2220

University of Birmingham Study Participant Information
https://drive.google.com/file/d/10CW_slePiO4n7HjVeimSuCGgfdEX1y-m/view

First Descents Outdoor Adventures for Young Adults Impacted by MS
https://firstdescents.org/programs/ms-programs/