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Past Podcast Episodes

Episode 207: The Benefits of Art and Music Therapy in MS with Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman


Imagine being able to see improvement in cognition, motor function, and self-esteem, while enhancing neurological functions like walking and speech without taking another pill or even breaking a sweat.

Joining me to talk about the evidence-based benefits that people living with MS can gain through music and art therapy are Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman.

Dr Meera Rastogi Veronica DeNoma and Betsy Hartman

We're also talking about the shocking and deeply concerning outcome of a study used to validate the reliability of a new tool to measure MS caregiver abuse.

We'll tell you how Zoom is working to make telehealth appointments better for everyone.

We're sharing the results of a study that measured the efficacy of a phone-based app to manage anxiety among young people diagnosed with pediatric MS.

Think you might like rock-climbing in the Rockies or whitewater kayaking on the Rogue River in Oregon? We'll give you the details of First Descents' 2022 outdoor adventures that are available at no cost to young adults living with MS.

And we'll remind you that Burgers to Beat MS is happening in Canada this Thursday. Find out how you can be a part of it no matter where you live!

We have a lot to talk about! Are you ready for RealTalk MS??!


Burgers to Beat MS happens this Thursday!  :22

STRESS-MS measures MS caregiver abuse  2:46

Zoom is making improvements to telehealth  7:02

An app to reduce anxiety among young people diagnosed with pediatric MS  9:33

Free rock-climbing and whitewater kayaking adventures for young adults living with MS  13:17

Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman discuss how art and music therapy can deliver real benefits to people living with MS  16:58

Share this episode  33:45

Download the free RealTalk MS app for your iOS or Android device  34:05


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/207


ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Burgers to Beat MS
https://BurgersToBeatMS.ca

STUDY: Validity and Reliability of the Scale to Report Emotional Stress Signs — Multiple Sclerosis (STRESS-MS)
https://meridian.allenpress.com/ijmsc/article/doi/10.7224/1537-2073.2020-016/467361/Validity-and-Reliability-of-the-Scale-to-Report

STUDY: Mobile Attention Bias Modification Training Is a Digital Health Solution for Managing Distress in Multiple Sclerosis: A Pilot Study in Pediatric Onset
https://www.frontiersin.org/articles/10.3389/fneur.2021.719090/full

First Descents Outdoor Adventure Program Application
https://firstdescents.org/programs/programs-application/

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 207
Guest: Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Filed Under: Uncategorized

Episode 206: The Importance of Advocacy with MS Activist Jenna Green


If you've ever wondered about whether MS advocacy makes a real difference, please consider that last year alone, MS Activists helped to bring about these changes:

  • $10 Million increase in funding for the Congressionally-Directed MS Research Program
  • $3 Billion increase in funding for the National Institutes of Health
  • Sustained funding for the CDC's National Neurological Conditions Surveillance System (studying MS is one of the first 2 pilot projects for this new program)
  • Passage of the CREATES Act (designed to lower prices and increase competitiveness in generic drug development)

Beyond these milestone achievements, advocating on behalf of your own interests is a personally empowering experience. Joining me to talk about what advocacy is all about is MS Activist Jenna Green.

Jenna Green

We're also sharing the details of a clinical trial that measured the effects of the Wahls Diet and the Swank Diet on MS-related fatigue and quality of life.

We'll tell you about a study that identified a potential biomarker for MS-related cognitive decline.

We're talking about the FDA approval of Botox as a treatment for upper-limb spasticity.

And we'll let you know how you can support the MS Society of Canada by buying a burger.

We have a lot to talk about! Are you ready for RealTalk MS??!


This part is all about you  :22

Study measures the effects of Wahls Diet and Swank Diet on MS-related fatigue and quality of life  4:03

Study identifies potential biomarker for MS-related cognitive decline   6:58

FDA approves Botox for managing upper-limb spasticity  10:35

A&W's Burgers to Beat MS benefits MS Society of Canada  11:34

MS Activist Jenna Green talks about what advocacy means and why it matters  14:05

Share this episode  31:46

Download the free RealTalk MS app for your iOS or Android device  32:06


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/206


ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS
https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Advocate for Change — Be an MS Activist
https://nationalmssociety.org/advocacy

STUDY: Impact of the Swank and Wahls Elimination Dietary Interventions on Fatigue and Quality of Life in Relapsing-Remitting Multiple Sclerosis: The WAVES Randomized Parallel-Arm Clinical Trial
https://journals.sagepub.com/doi/10.1177/20552173211035399

STUDY: Cognitive Decline in Multiple Sclerosis is Related to the Progression of Retinal Atrophy and Presence of Oligoclonal Bands: A 5-Year Follow-Up Study
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8315759/

Updated Botox label information
https://media.allergan.com/actavis/actavis/media/allergan-pdf-documents/product-prescribing/20190620-BOTOX-100-and-200-Units-v3-0USPI1145-v2-0MG1145.pdf

Burgers to Beat MS
https://BurgerstoBeatMS.ca

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 206
Guest: Jenna Green

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS

Privacy Policy

 

Filed Under: Uncategorized

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