Past Podcast Episodes

About 80% of the people with relapsing-remitting MS will eventually be diagnosed with secondary progressive MS. At that point, their remissions stop and their MS symptoms continue to worsen. And about 15% of the people diagnosed with MS are diagnosed from the beginning with primary progressive MS. So identifying ways to optimally treat progressive MS is a priority.

Dr. Daniel Ontaneda and Dr. Kathy Zackowski

Joining me with updates on progressive MS research, treatment, and rehabilitation are Dr. Kathy Zackowski and Dr. Daniel Ontaneda. Dr. Ontaneda is an associate professor of Neurology at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University and a staff member at the Cleveland Clinic Neurological Institute's Mellen Center for Multiple Sclerosis. And Dr. Zackowski is the Senior Director of Patient Management, Care and Rehabilitation Research at the National MS Society and a member of the International Progressive MS Alliance Scientific Steering Committee.

We're sharing some startling details about MS care from the European MS Platform's MS Barometer 2020.

We're talking about a study that shows that lifestyle choices like increasing physical activity and choosing not to smoke can have a positive impact on MS fatigue.

And we'll tell you about a new program that empowers people affected by MS to pose the questions that will drive MS research.

We have a lot to talk about! Are you ready for RealTalk MS??!

Details from the European MS Platform's MS Barometer 2020 1:34

The International Progressive MS Alliance issues a call to action on progressive MS rehabilitation with Dr. Kathy Zackowski 4:35

Study shows that lifestyle changes can impact MS fatigue 18:00

Our Own Questions Have Power 19:20

Progressive MS treatment and Research with Dr. Daniel Ontaneda 21:03

Share this episode 38:17

Take the RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card 38:38

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Just copy this link & paste it into your text or email: https://realtalkms.com/187

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!)

National MS Society COVID-19 Vaccine Guidance for People Living with MS

MS Barometer 2020

Prioritizing Progressive MS Rehabilitation Research: A Call from the International Progressive MS Alliance

STUDY: Associations Between Fatigue Impact and Lifestyle Factors in People with Multiple Sclerosis: The Danish MS Hospitals Rehabilitation Study

iConquer MS: Our Questions Have Power

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 187
Guests: Dr. Kathy Zackowski and Dr. Daniel Ontaneda

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS

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Living through a lockdown can be challenging, and it's resilience that helps us get through life's challenges and recover from setbacks. And while resilience may have become a new topic of conversation for the world at large, when you're living with the uncertainty of MS, you come to realize that resilience is one of the most important tools in your self-care toolbox.

Dr. Meghan Beier

Joining me to talk about building your resilience is Dr. Meghan Beier. Dr. Beier is a Rehabilitation Neuropsychologist and an Assistant Professor of Physical Medicine at the Johns Hopkins University School of Medicine, where she specializes in cognitive rehabilitation and neuropsychological assessment and intervention.

We'll also share the National MS Society's Vaccine Advisory Group's updated vaccine guidance for people living with MS.

We'll tell you about the new oral disease-modifying therapy that just received FDA approval.

You'll hear about the newly-announced partnership between the MS Society and Park Health, and we'll explain how this partnership will deliver personalized one-to-one health coaching to help people live better with MS.

And we'll tell you about the entrepreneur who won the Lyfebulb Bristol Myers Squibb MS Innovation Challenge by setting out to resolve one of his father's most bothersome MS symptoms.

We have a lot to talk about! Are you ready for RealTalk MS??!

National MS Society's Vaccine Advisory Group announces updated guidance for people living with MS 2:03

Here's your chance to participate in COVID-19 & MS research 4:32

Ponesimod receives FDA approval 5:29

National MS Society announces partnership with Park Health 6:24

Evolution Devices wins Lyfebulb Bristol Myers Squibb Innovation Challenge 8:18

My interview with Dr. Meghan Beier 11:19

Share this episode 25:35

Take the RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card 25:54

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/186