Past Podcast Episodes

November 11 is Veterans Day in the United States, giving us an opportunity to honor the men and women who have served in America's armed forces. More than 70,000 U.S. veterans are living with MS, and joining me on the podcast is Karla Clay, an Air Force veteran, and a National Veterans Wheelchair Games multiple medal winner. We're talking about the life-changing turn that Karla's MS journey ended up taking.

Karla Clay

As of today, the fate of the Affordable Care Act and the legal protections for people with pre-existing conditions are in the hands of the Supreme Court. So we're also talking about The 100 Days Agenda: A Patient-First Blueprint. This document is the result of a collaboration between the National MS Society and 33 other patient organizations and it provides specific steps that the President and other elected officials can take to protect access to adequate, affordable insurance coverage for people with pre-existing conditions.

We'll tell you about a study that identifies a potential new risk associated with disease-modifying therapies for people living with MS who are over the age of 45.

And the month of November is loaded with outstanding webinars and conferences featuring some of the leading MS experts in the world. The good news is that you can virtually attend all of these online events at no charge, from the comfort of your own home. We're sharing all the details and we'll tell you where to register for each one!

We have a lot to talk about! Are you ready for RealTalk MS??!

As of today, the legal protections for people with pre-existing conditions is in the hands of the U.S. Supreme Court :22

National MS Society and 33 other patient organizations publish The 100 Days Agenda: A Patient-First Blueprint 2:25

Study identifies a potential new DMT risk for people living with MS who are over the age of 45 3:34

November is loaded with outstanding webinars and conferences that you can attend virtually…for FREE! 5:04

International Progressive MS Alliance Global Webcast: Speeding Life-Changing Treatments for Progressive MS 5:25

National Alliance for Caregiving and the Rosalynn Carter Institute for Caregiving webinar: Flattening the Caregiver Crisis Curve 5:57

European MS Platform Annual Conference: Understanding Progressive MS 7:52

MS Society of Canada 2020 MS-CONNECT Conference 8:48

My Interview with Karla Clay, Capt USAF 9:41

Share this episode 31:09

Donate to the National MS Society COVID-19 Response Fund 31:28

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/167

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National Veterans Wheelchair Games

Paralyzed Veterans Of America

U.S. Department of Veterans Affairs Multiple Sclerosis Centers Of Excellence

The 100 Days Agenda: A Patient-First Blueprint

Register for the International Progressive MS Alliance Global Webcast: Speeding Life-Changing Treatments for Progressive MS

Register for the MS Society of Canada's 2020 MS-CONNECT Conference

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 167
Guests: Karla Clay, Capt USAF (Ret)

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, VeteransDay, EMSPVirtual2020, MSConnect, Caregiving, RealTalkMS

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Fatigue is considered to be the most common MS symptom and also one of the most disabling because fatigue can interfere with every aspect of someone's life — at home, at work, in their relationships — in every way, fatigue can have a profound impact on your quality of life. We're talking about how to best manage MS-related fatigue with two experts on the subject, Dr. Bardia Nourbakhsh, and Dr. Kathy Zackowski.

Remembering Karen Jackson

We're also remembering Karen Jackson, an MS activist, tireless advocate, a supporter of people-powered research, friend to this podcast, and a special person who we were lucky to know.

We're also talking about the National MS Society's first recommendation for stem cell therapy as a treatment for MS. This recommendation comes with some important caveats and we'll cover them all.

We'll share some very disturbing survey results that reveal widespread mistreatment of MS patients by their family caregivers. And we'll tell you what we're doing about it.

If you're an adult living with MS, we'll share the details of an opportunity for you to participate in a clinical trial from the comfort of your own home, as researchers study the health benefits of tele-exercise.

And you'll meet a true difference-maker in the MS community when you meet Cristina Antelo, who submitted the winning bid in a fundraising auction for the National MS Society. And the item that Cristina bid on was…..this interview!

We have a lot to talk about! Are you ready for RealTalk MS??!

Remembering Karen Jackson :22

National MS Society issues a recommendation for stem cell therapy 4:05

NARCOMS survey uncovers widespread mistreatment of MS patients by their caregivers 8:34

Adults with MS wanted for tele-exercise clinical trial 13:08

My Interview with Dr. Bardia Nourbakhsh & Dr. Kathy Zackowski 14:44

My Interview with Cristina Antelo 31:23

Share this episode 44:21

Donate to the National MS Society COVID-19 Response Fund 44:44

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/166

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Autologous Hematopoietic Stem Cell Transplant in Multiple Sclerosis: Recommendations of the National Multiple Sclerosis Society

SURVEY: Abuse and Neglect of People with Multiple Sclerosis: A Survey with the North American Research Committee on Multiple Sclerosis (NARCOMS)

To Participate in the Burke Neurological Institute Tele-Exercise Clinical Trial Contact Amy Bialek
Phone: (914) 597-2347
Email: amb3003@med.cornell.edu

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 166
Guests: Dr. Bardia Nourbakhsh, Dr. Kathy Zackowski, and Cristina Antelo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, RealTalkMS

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