Past Podcast Episodes

A lot of us may have to think back to a time before the pandemic to remember what it felt like to get a good night's sleep. But if you're someone living with MS, you might have to think back even further. Research tells us that more than half the people living with MS report significant disruptions in their sleep and difficulty maintaining a consistent sleep schedule. And that can lead to additional health issues along with an overall decline in quality of life and wellbeing.

My guest is Dr. Katie Siengsukon, a physical therapist, Associate Professor, and Director of the Sleep, Health, and Wellness Lab at the University of Kansas Medical Center Department of Physical Therapy and Rehabilitation Science. We're talking about the importance of sleep to your overall health, how sleep problems affect MS, and the steps you can take if you're experiencing sleep problems.

We're also talking about how the things that people affected by MS care most about really boil down to public policy decisions, making MS advocacy a critical element of this podcast. And while we're on the subject of advocacy, we're sharing our rant about a recently announced “healthcare plan” for the United States.

You'll hear about what I'm calling a wellness roadmap for people living with MS.

We'll give you the details of a newly-announced collaboration designed to produce a diagnostic test for a protein called neurofilament light chain — and why that will be a game-changer for people living with MS.

And we'll tell you about a clinical trial that will be starting soon for a therapy designed to reduce or eliminate MS disease activity by re-educating your immune system.

We have a lot to talk about! Are you ready for RealTalk MS??!

Why it's always been about MS advocacy 1:25

My rant about the “healthcare plan” that was just announced 5:00

Maintaining your physical, nutritional, and emotional wellness amid COVID-19 11:57

Here comes a diagnostic test for neurofilament light chain…and why it will be a game-changer for people living with MS 16:57

“Re-educating” your immune system. A Phase 1 clinical trial for ANK-700 begins soon 19:44

My Interview with Dr. Katie Siengsukon 22:17

Share this episode 34:44

Donate to the National MS Society COVID-19 Response Fund 35:07

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/161

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Vote.gov

Health Behaviors, Wellness, and Multiple Sclerosis Amid COVID-19

RealTalk MS Episode 142: New Guidelines for Exercise & Physical Activity from the National MS Society

RealTalk MS Episode 159: Building Resilience with Dr. Dawn Ehde

Anokion: What is Immune Tolerance?

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 161
Guests: Dr. Katie Siengsukon

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, Sleep, Vote, RealTalkMS

Privacy Policy

Of all the people living with MS, you might assume that people living with progressive MS have experienced the highest levels of anxiety and depression related to the threat of COVID-19. A research team found themselves at the right place at the right time — conducting a different progressive MS study. They quickly pivoted to investigate the emotional impact of the COVID-19 pandemic on people living with progressive MS.

My guest is Dr. Anthony Feinstein, a professor of psychiatry at the University of Toronto and a neuropsychiatrist. He is also the principal investigator of the CogEx study, and he's sharing the newly published results of his team's work.

We're also talking about the importance of your vote in the upcoming U.S. election, and we'll help you check your voter registration and even register to vote.

The National MS Society's Ambassadors Ball is happening on September 30. This year it's virtual and it's free. We'll tell you how you can attend.

You'll hear the details of a study that revealed some sobering truths about the financial toxicity of MS. And we'll let you know how you can participate in the MS Society's survey of the economic impact of MS.

We'll also give you a heads-up about how the slowdown in U.S. mail delivery may impact the delivery of your MS disease-modifying therapies.

And we're talking about a study from Australia that demonstrates how engaging with credible health resources (Um…hello!) often leads to adopting a healthy lifestyle.

We have a lot to talk about! Are you ready for RealTalk MS??!

Check out RealTalk MS on Amazon Music! :22

MSVirtual2020 — there's more to come 1:17

Advocacy begins by casting your vote 3:49

Join me at the National MS Society's Ambassadors Ball 6:34

Measuring the financial toxicity of MS 8:43

You can participate in the National MS Society's survey of the economic impact of MS 10:36

Mail delivery delays = disease-modifying therapy delays 12:01

Survey shows that people who engage with health resources adopt a healthy lifestyle 13:30

My Interview with Dr. Anthony Feinstein 16:03

Share this episode 22:21

Donate to the National MS Society COVID-19 Response Fund 22:42

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/160

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

The Emotional Impact of the COVID-19 Pandemic on Individuals with Progressive Multiple Sclerosis

Vote.gov

National MS Society's Ambassadors Ball

STUDY: Patient-Reported Financial Toxicity in Multiple Sclerosis: Predictors and Association with Care Non-Adherence

National MS Society Survey: The Economic Impact of MS

I'm a Veteran Who Gets My Medicines Through the Mail

STUDY: Greater Engagement with Health Information is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group