Past Podcast Episodes

Almost everything that we've learned about multiple sclerosis is the result of people with MS choosing to participate in clinical research. When it comes to MS and most every other chronic illness, clinical research is the common denominator of all medical progress.

This week, we're breaking down the details of MS clinical research with my guests, Dr. Sandi Cassard, a research associate in the Neurology department at Johns Hopkins School of Medicine, and Diane Kramer, who has participated in more than 20 research studies since being diagnosed with MS in 2010.

And after analyzing COVID-19 MS patient registries and studies from countries around the world, the MS International Federation has issued updated COVID-19 guidance for people living with MS. We'll tell you about it — and if you've downloaded the RealTalk MS app from the Apple App Store or Google Play, you'll receive your own copy of this detailed guidance under the Bonus Content tab!

We also have some final words before election day to share with our listeners in the U.S. And they're not even our words!

We'll share the results of a study that may offer a clue as to why African-Americans with MS are likely to experience more relapses, greater disability, and often require mobility assistance earlier in their disease course when compared to Caucasians with MS.

You'll also hear about an MRI study that shows Hispanics with MS are at a higher risk for developing more aggressive forms of MS at an earlier age when compared to Caucasians with MS.

And you'll meet a true difference-maker when you meet Nightingale Award recipient and founder of MS Bright Spots of Hope, Michelle Keating.

We have a lot to talk about! Are you ready for RealTalk MS??!

Have you checked out MSTranslate? 1:03

Healthcare is on the ballot! Have you voted yet??? 3:42

MSIF issues updated COVID-19 guidance for people living with MS 9:38

Researchers discover 2 gene variants that may help explain why African-Americans with MS often have a more severe disease course than Caucasians with MS 10:58

A study shows that Hispanics with MS are at a higher risk of developing more aggressive forms of MS at an earlier age. 12:44

My Interview with MS researcher Dr. Sandi Cassard and Diane Kramer 14:57

My Interview with Nightingale Award recipient and founder of MS Bright Spots of Hope Michelle Keating 24:08

Share this episode 35:52

Donate to the National MS Society COVID-19 Response Fund 36:12

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/165

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

MSTranslate

MSIF Global COVID-19 Advisory for People with MS

STUDY: Two Genetic Variants Explain the Association of European Ancestry with Multiple Sclerosis Risk in African-Americans

UCSF Multiple Sclerosis Genetics Project

STUDY: Brain MRI Finds Hispanic Patients Develop More Aggressive MS

MS Bright Spots of Hope

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 165
Guests: Dr. Sandi Cassard, Diane Kramer, and Michelle Keating

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, MSIF, MSInternationalFederation, COVID-19, RealTalkMS

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MS doesn't only affect individuals. It affects families. And that's probably most clear when we're talking about pediatric MS. The National MS Society estimates that there are about 5,000 diagnosed cases of pediatric MS in the United States and less than 10,000 cases worldwide. But those numbers become far less important when your child is one of those diagnosed cases. We're taking a deep dive into pediatric MS with Hannah Schnitzler, who lives with pediatric MS, Hannah's mom, Melissa Fisher, and pediatric MS expert Dr. Brenda Banwell.

We're also talking about study results that show a simple sugar that's available over the counter is effective in preventing myelin degeneration in the mouse model of MS. And we'll tell you how a research team at the University of Chicago went about designing a novel MS therapy that's been shown to promote myelin repair and even stop MS from developing in the mouse model of MS.

You'll hear about the first oral disease-modifying therapy that's been approved to treat active secondary progressive MS in England, Wales, and Scotland. And we'll tell you how you can be a part of future MS research projects.

We have a lot to talk about! Are you ready for RealTalk MS??!

Study shows an over-the-counter simple sugar promotes myelin repair in the mouse model of MS 1:31

Researchers design a new MS therapy that reduces MS symptoms and even prevents MS from developing in the mouse model of MS 3:15

Mayzent approved for treating active secondary progressive MS in England, Wales, and Scotland 5:28

Online survey for parents of a child living with pediatric MS 8:02

My Interview with pediatric MS patient Hannah Schnitzler and her mom 9:22

My Interview with pediatric MS expert Dr. Brenda Banwell 21:57

Share this episode 42:00

Donate to the National MS Society COVID-19 Response Fund 42:21

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/164

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

STUDY: N-acetylglucosamine Drives Myelination By Triggering Oligodendrocyte Precursor Cell Differentiation

STUDY: Prolonged Residence of an Albumin-IL-4 Fusion Protein in Secondary Lymphoid Organs Ameliorates Experimental Autoimmune Encephalomyelitis

SURVEY: University of Washington Multiple Sclerosis Rehabilitation & Wellness Center Research Participant Survey

SURVEY: Parents of a Child with Pediatric MS (English)

SURVEY: Parents of a Child with Pediatric MS (Spanish)

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 164
Guests: Hannah Schnitzler, Melissa Fisher & Dr. Brenda Banwell

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, PediatricMS, RealTalkMS

Privacy Policy

Episode 165: Understanding MS Clinical Research with Dr. Sandi Cassard and Diane Kramer

Episode 164: Understanding Pediatric MS with Hannah, her Mom, and Dr. Brenda Banwell