Past Podcast Episodes

Access to MS symptom self-management care is extremely limited. That's why my guest, Dr. Anna Kratz, and her colleagues created My MS Toolkit — a web-based, self-guided symptom self-care program designed especially for people with MS. (And it's FREE!)

We're talking with Dr. Kratz about how My MS Toolkit was developed and what makes it such a powerful online tool for people living with MS.

We're also talking about the latest petitions filed with the Supreme Court in the battle over the Affordable Care Act (and why this is so vitally important to people affected by MS!). If you're using gabapentin (Neurontin) to manage MS pain, we'll tell you about the warning that was just issued by the FDA.

Yet another study gives us yet another reason to start disease-modifying therapy as soon as possible. And we'll explain why collecting real-world data about MS is so important, and what a team of MS experts is recommending to improve the process of real-world data collection and analysis.

We have a lot to talk about! Are you ready for RealTalk MS??!

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Where I'll Be in January :27

National MS Society Joins 23 Other Patient Organizations in Requesting Supreme Court Expedites Its Review of the ACA 3:00

FDA Issues Warning About Gabapentinoids 6:51

Disease-Modifying Therapy Use Has Changed the ‘Natural History' of Relapsing-Remitting MS 7:57

Paper Explores How Real-World Data Can Be Better Leveraged to Speed Solutions to People Living with MS 9:34

My Interview with Dr. Anna Kratz 15:04

Share This Episode 36:00

Download the RealTalk MS App 36:29

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SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: http://realtalkms.com/123

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

My MS Toolkit

FDA Warns About Serious Breathing Problems when Gabapentin and Pregabalin Are Used With CNS Depressants or By Patients with Lung Problems

STUDY: Outcomes in a Modern Cohort of Treated Multiple Sclerosis Patients Followed from Diagnosis Up to 15 Years

Leveraging Real-World Data to Investigate Multiple Sclerosis Disease Behavior, Prognosis, and Treatment

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RealTalk MS Episode 123
Hosted By: Jon Strum
Guests: Dr. Anna Kratz

Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, Gabapentinoids, ACA, RealTalkMS

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MS Warriors are those special individuals whose efforts on behalf of people affected by MS go above and beyond the norm to raise awareness, raise funds, and raise our spirits My guest this week is Marc Boyer. Marc biked more than 4,000 miles, from one end of Canada to the other, raising over $160,000 for the MS Society of Canada. Marc not only raised money that will fund important MS research, his coast-to-coast ride also raised MS awareness throughout Canada.

Marc Boyer Bikes Across Canada for MS

We're also taking a look back at the MS-related legislative wins, losses, and draws that we faced in 2019. We're talking about gains in federal funding for MS research, first steps in trying to get a handle on the escalating cost of MS prescription medications, and some political outcomes that didn't go well for people living with MS and other chronic illnesses.

We have a lot to talk about! Are you ready for this holiday edition of RealTalk MS??!

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MS Advocacy: A 2019 Legislative Review 1:16

My Interview with Marc Boyer 19:56

Share This Episode 33:23

Download the RealTalk MS App 33:51

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SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: http://realtalkms.com/122

Episode 123: My MS Toolkit with Dr. Anna Kratz

Episode 122: An Epic Bike Ride Across Canada for MS with Marc Boyer