Past Podcast Episodes

This past year, a bill was introduced in the California State Assembly that would create more transparency among pharmaceutical companies and make more lower-cost generic drugs available to Californians by making it easier for the California Attorney General to prosecute pharmaceutical companies for so-called “pay for delay” deals.

MS Activists in California talked to our state legislators, asking them to support this bill, known as AB 824, and on January 1st, California Governor Gavin Newsom signed AB 824 into law. My guest is the author of AB 824, California Assemblymember Jim Wood. We're talking with Assemblymember Wood about what it was like to guide a bill that the pharmaceutical industry came out against through the state legislature and see it signed into law.

We'll share results of a new study that shows that undiagnosed and under-diagnosed depression is a serious problem that negatively impacts the quality of life among many older adults living with MS.

We'll tell you about a U.S. Circuit Court of Appeals ruling that leaves the fate of the Affordable Care Act in the hands of the U.S. Supreme Court — and what that means for people living with MS.

And we'll tell you about Dr. Francisco Quintana, this year's recipient of the Barancik Prize for exceptional innovation and originality in MS research.

We have a lot to talk about! Are you ready for RealTalk MS??!

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Where I'm Going to Be This Month :22

Can You Help Me Out? 2:14

Barancik Prize Awarded to Dr. Francisco Quintana 5:25

Untreated Depression Negatively Impacts Older Adults Living with MS 7:21

Judge Hands FDA a Loss on Stem Cell Clinics 10:59

Appeals Court Won't Review Affordable Care Act Decision 13:17

My Interview with California Assemblymember Jim Wood 17:20

Share This Episode 27:01

Download the RealTalk MS App 27:27

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SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/127

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Jon's WALK MS Fundraising Page

STUDY: Under-Treated Depression Negatively Impacts Lifestyle Behaviors, Participation, and Health-Related Quality of Life Among Older People with Multiple Sclerosis

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Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 127
Hosted By: Jon Strum
Guests: California Assemblymember Jim Wood

Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, RealTalkMS

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Multiple studies show that early and ongoing treatment with disease-modifying therapy is the most effective way to slow MS progression, modify the course of the disease, and maintain optimal brain health. Yet, for many people living with MS, these life-changing treatments remain out of reach. The National MS Society has released the results of a new survey that demonstrates that this problem may be much larger and more serious than you may have imagined.

My guests are Tim Coetzee, the Chief Advocacy, Research, and Services Officer, and Bari Talente, the Executive Vice President of Advocacy for the National MS Society, and we're talking about the barriers to accessing MS medications and what can be done to bring those barriers down.

We're also talking about the U.S. Supreme Court's decision to reject a petition filed by 20 state attorneys general, the U.S. House of Representatives, and supported by the National MS Society and 23 other patient organizations, to issue an expedited ruling on the constitutionality of the Affordable Care Act. And we'll tell you about a study that shows that some mothers of children living with MS are experiencing significant levels of anxiety and mood disorders.

We'll share some good news for people in Europe living with secondary progressive MS. We'll tell you where you can catch the replay of last week's International Progressive MS Alliance Managing Symptoms & Enhancing Well-Being in Progressive MS Facebook Live event. And we'll tell you how a group of insurance companies is banding together to lower the price of generic prescription medications.

We have a lot to talk about! Are you ready for RealTalk MS??!

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Catch the Replay of the International Progressive MS Alliance Managing Symptoms & Enhancing Well-Being in Progressive MS Facebook Live Event 1:01

MS Society Joins Patient Organizations Commenting on Supreme Court Passing on ACA Ruling 2:04

New Study Signals Need for Attention to Mental Health Care in Mothers of Children with MS 5:56

Mayzent Approved for Secondary Progressive MS in Europe 8:04

Insurance Companies Unite to Make Cheaper Generics 8:49

My Interview with Tim Coetzee and Bari Talente 11:14

Share This Episode 21:31

Download the RealTalk MS App 21:57

___________

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/126

___________

ADD YOUR VOICE TO THE CONVERSATION

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

New Survey Shows 40% of People with MS Alter or Stop Taking Medications Due to High Cost

National MS Society: Make MS Medications Accessible

REPLAY: Symptom Management & Well-Being in Progressive MS Facebook Live Event

Patient Groups Disappointed by Ongoing Uncertainty in Wake of Supreme Court's Decision Not to Expedite Health Care Case

STUDY: Increased Mental Health Care Use by Mothers of Children with Multiple Sclerosis

Kids Get MS Too: A Guide for Parents of a Child or Teen with MS

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 126
Hosted By: Jon Strum
Guests: Tim Coetzee and Bari Talente