Past Podcast Episodes

Of all the people living with MS, you might assume that people living with progressive MS have experienced the highest levels of anxiety and depression related to the threat of COVID-19. A research team found themselves at the right place at the right time — conducting a different progressive MS study. They quickly pivoted to investigate the emotional impact of the COVID-19 pandemic on people living with progressive MS.

My guest is Dr. Anthony Feinstein, a professor of psychiatry at the University of Toronto and a neuropsychiatrist. He is also the principal investigator of the CogEx study, and he's sharing the newly published results of his team's work.

We're also talking about the importance of your vote in the upcoming U.S. election, and we'll help you check your voter registration and even register to vote.

The National MS Society's Ambassadors Ball is happening on September 30. This year it's virtual and it's free. We'll tell you how you can attend.

You'll hear the details of a study that revealed some sobering truths about the financial toxicity of MS. And we'll let you know how you can participate in the MS Society's survey of the economic impact of MS.

We'll also give you a heads-up about how the slowdown in U.S. mail delivery may impact the delivery of your MS disease-modifying therapies.

And we're talking about a study from Australia that demonstrates how engaging with credible health resources (Um…hello!) often leads to adopting a healthy lifestyle.

We have a lot to talk about! Are you ready for RealTalk MS??!

Check out RealTalk MS on Amazon Music! :22

MSVirtual2020 — there's more to come 1:17

Advocacy begins by casting your vote 3:49

Join me at the National MS Society's Ambassadors Ball 6:34

Measuring the financial toxicity of MS 8:43

You can participate in the National MS Society's survey of the economic impact of MS 10:36

Mail delivery delays = disease-modifying therapy delays 12:01

Survey shows that people who engage with health resources adopt a healthy lifestyle 13:30

My Interview with Dr. Anthony Feinstein 16:03

Share this episode 22:21

Donate to the National MS Society COVID-19 Response Fund 22:42

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/160

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

The Emotional Impact of the COVID-19 Pandemic on Individuals with Progressive Multiple Sclerosis

Vote.gov

National MS Society's Ambassadors Ball

STUDY: Patient-Reported Financial Toxicity in Multiple Sclerosis: Predictors and Association with Care Non-Adherence

National MS Society Survey: The Economic Impact of MS

I'm a Veteran Who Gets My Medicines Through the Mail

STUDY: Greater Engagement with Health Information is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS

National MS Society COVID-19 Response Fund

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 160
Guests: Dr. Anthony Feinstein

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, AmbassadorsBall, Vote, RealTalkMS

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This past weekend, 8,000 MS research scientists and clinicians gathered virtually for the joint meeting of the Americas Committee for Treatment and Research in Multiple Sclerosis and the European Committee for Treatment and Research in Multiple Sclerosis. Known as ACTRIMS-ECTRIMS, this year's conference was appropriately re-branded as MSVirtual2020.

We're talking about great presentations on the MS prodrome (and we'll explain what that is and why it's important), when it might be time to discontinue MS disease-modifying therapies, some encouraging progressive MS clinical trial results, the new number for global MS prevalence, and more!

We have a lot to talk about. Welcome to MSVirtual2020!

The MS Prodrome :56

When is it appropriate to discontinue disease-modifying therapy in MS? 4:18

Study shows Masitinib slows disability progression in progressive MS 6:49

Multiple Sclerosis International Federation announces the Atlas of MS, with Clare Walton 9:08

Study shows disease-modifying therapy may delay disability progression and time until people with primary progressive MS need a wheelchair 20:55

Study analyzes benefits of Wahls Diet & Swank Diet 22:47

Atara Biotherapeutics shares initial data from its ATA-188 cell therapy clinical trial, with Dr. AJ Joshi 24:07

Share this episode 40:17

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/MSVirtual2020

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating and Review

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Join the RealTalk MS Facebook Group

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating and Review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Bonus Episode:
Guests: Clare Walton, Dr. AJ Joshi

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSVirtual2020, RealTalkMS

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