RealTalk MS

Past Podcast Episodes

Episode 99: Standing Up in MS with Professor Jenny Freeman


My guest is Jenny Freeman, Professor of Physiotherapy and Rehabilitation at the University of Plymouth, in the United Kingdom. Professor Freeman's research has appeared in more than 150 journals and publications. And she's the co-author of Multiple Sclerosis Care — A Practical Manual, the reference book for all aspects of MS care. We're going to be talking with Professor Freeman about the just-published results of a clinical trial that I think will add a very effective component to physical rehabilitation for people living with progressive MS.

Professor Jenny Freeman

 

And if you believe that losing thousands of dollars and gaining no benefit is the worst thing that can go wrong when it comes to unproven stem cell treatments for MS…well, you're not even close. We're talking about how bad it can really get.

We'll also tell you about the new pilot research grants that the National MS Society just announced. You'll learn about a program that offers amazing outdoor adventure experiences to young adults who are living with MS. And did we also mention that these programs are free??? And you'll have an opportunity to participate in a really interesting clinical trial.

We have a lot to talk about. Are you ready for RealTalk MS??!

NEW! Download a transcript of this episode!

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Unproven Stem Cell Treatments for MS — The Worst Thing That Can Happen is A Lot Worse Than You Think It Is!  1:44

National MS Society Funds 10 High-Risk Pilot Research Grants  10:20

First Descents Expands Outdoor Adventure Experiences for Young Adults Living with MS   12:50

Your Opportunity to Participate in a Really Interesting Clinical Trial (No Drugs Involved)  14:35

Study Results Reveal Physical Rehabilitation That Improves the Lives of People Living with Progressive MS  16:09

My Interview with Professor Jenny Freeman  17:19

RealTalk MS Episode 100 Is Just 1 Week Away! How To Leave Us a Rating & Review   28:27

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Standing Up in Multiple Sclerosis (SUMS)

STUDY: Assessment of a Home-Based Standing Frame Programme in People with Progressive MS (SUMS): A Pragmatic, Multi-Centre, Randomised, Controlled Trial and Cost-Effectiveness Analysis

National MS Society Announces New Pilot Research Projects Beginning Summer 2019

First Descents Program Inquiry

PARTICIPATE: Interventions to Improve Cognitive Functioning In Multiple Sclerosis

Website: The Ohio State University Clinical Neuroscience Lab

Phone: 614-292-9568

Email:  ra@clinicalneurosciencelab.com

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RealTalk MS Episode 99
Hosted By: Jon Strum
Guest: Professor Jenny Freeman

Tags: MS, MultipleSclerosis, mssociety, MSResearch, Stemcells, FirstDescents, RealTalkMS

 

Episode 98: Navigating Social Security Disability Benefits with Jamie Hall, Esq.


Applying for social security disability benefits can be difficult. It's a stressful and challenging process with an outcome that seems fraught with uncertainty.

My guest, Jamie Hall, has represented social security disability claimants before administrative law judges and the Appeals Council in 24 different states. Jamie is also a member of the MS Society's 2010 Leadership Class, and he served as an editor of the National MS Society's SSDI guidebook. Today, we're talking with Jamie about how to take some of that stress and uncertainty out of the process of applying for Social Security disability benefits.

Jamie Hall

We're also talking about the serious blow to your ability to access quality healthcare that occurred last week. We'll explain why the World Health Organization rejected the MS International Federation's application to add 3 MS disease-modifying therapies to the 2019 Essential Medicines List. There's news about the connection between your lifestyle choices and MS depression, and I'll share why I see MS depression as a potential matter of life or death.

We have a lot to talk about. Are you ready for RealTalk MS??!

NEW! Download a transcript of this episode!

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Some Real Talk About the Attack on the Affordable Care Act  2:00

World Health Organization Rejects All MS Medications Submitted for the 2019 Essential Medicines List  10:04

Diagnosing MS With a “Breath Biopsy”   13:00

Australian Researchers Show a Link Between Lifestyle Choices and  MS Depression  15:29

Why Treating MS Depression Matters So Much  19:47

My Interview with Jamie Hall  23:15

Have You Downloaded the RealTalk MS App?  40:11

 ___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The Law Office of Jamie R. Hall

Applying for Disability Benefits: A Guidebook for People with MS and Their Healthcare Providers (PDF)

STUDY: Exhaled Breath Markers for Nonimaging and Noninvasive Measure for Detection of Multiple Sclerosis

STUDY: Modifiable Factors Associated with Depression and Anxiety in Multiple Sclerosis

STUDY: Association Between Suicide and Multiple Sclerosis: An Updated Meta-Analysis

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review 

NEW! Download a Transcript of This Episode

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 98
Hosted By: Jon Strum
Guest: Jamie Hall, Esq.

Tags: MS, MultipleSclerosis, MSResearch, AffordableCareAct, Depression, MSIntFederation, RealTalkMS