Past Podcast Episodes

We're just a week away from the National MS Society's Public Policy Conference in Washington, D.C. And my guest is Diane Kramer, an MS Activist from State College, Pennsylvania, who will be attending the Public Policy Conference for the first time.

Diane has experienced some of the same obstacles and frustrations that so many people living with MS experience — insurance companies preventing her from getting the disease-modifying therapy that her neurologist prescribed, having the high cost of her MS medication force her to make nearly impossible financial choices, even skipping treatment. But whether she's knocking on the doors of neurologists' offices in her area so that she can connect them with resources from the MS Society, or starting an MS support group in her community when she found there wasn't one, Diane is a force to be reckoned with.

Jon also has some difficult news to share. And we'll tell you how you can support Jon in this year's Walk MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

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Greetings from the ACTRIMS Forum :22

Some Difficult News :58

You Can Support Jon in WALK MS 2:36

My Interview with Diane Kramer 3:58

Share This Episode 26:37

Reminder…Please Donate to Walk MS 27:02

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SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/130

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Jon's WALK MS Fundraising Page

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 130
Hosted By: Jon Strum
Guests: Diane Kramer

Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, MSPPC20, RealTalkMS

Privacy Policy

In just two weeks, the National MS Society is hosting its annual Public Policy Conference in Washington, D.C. The centerpiece of that conference is our Day On The Hill when 300 MS Activists meet with our Congressional Representatives and Senators to discuss the legislative issues that are most important to people affected by MS.

My guest is Bari Talente, the Executive Vice President of Advocacy for the National MS Society and we're talking all about this year's Public Policy Conference and the value and importance of advocacy.

We'll also let you know how and where to sign up for Discovering Life-Changing Treatments for Progressive MS, the global webcast from the International Progressive MS Alliance. (You have to hurry! It's happening in 2 days!)

You'll hear about an encouraging study of the effectiveness of stem cell therapy for some people living with secondary progressive MS. We're also talking about why you might want to support Jon in this year's Walk MS. And you'll learn about a non-invasive breakthrough technology that provides a detailed assessment of the status of MS progression and the effectiveness of disease-modifying therapy…in 10 seconds.

We have a lot to talk about! Are you ready for RealTalk MS??!

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Sharing Some Crazy Statistics :44

We're Just 2 Weeks Away From the Public Policy Conference 2:27

You Can Support Jon in WALK MS 4:54

HSCT Shows Benefits in Some People with Secondary Progressive MS 6:23

New Eye-Tracking Tech Uses AI to Monitor MS 9:09

My Interview with Bari Talente 11:54

Share This Episode 26:03

Reminder…Please Donate to Walk MS 26:28

Download the RealTalk MS App 27:03

___________

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/129

___________

ADD YOUR VOICE TO THE CONVERSATION

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Jon's WALK MS Fundraising Page

Register for the International Progressive MS Alliance Global Webcast: Discovering Life-Changing Treatments for Progressive MS

Low-Intensity Lympho-Ablative Regimen Followed by Autologous Hematopoietic Stem Cell Transplantation in Severe Forms of Multiple Sclerosis: A MRI-Based Clinical Study

BEAT-MS Clinical Trial

C. Light Technologies

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 129
Hosted By: Jon Strum
Guests: Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, RealTalkMS