Past Podcast Episodes

Episode 95: Ambiguous Loss with Dr. Pauline Boss

How do you adjust every aspect of your relationship when the partner you've known seems to be vanishing right before your eyes, yet they're still very much there? If you're a caregiver for someone with progressive MS, or any chronic illness, it's very likely that you're living with the trauma of ambiguous loss.

Ambiguous Loss

My guest is Dr. Pauline Boss, who not only coined the phrase ambiguous loss, but has spent her career teaching university students, practicing as a clinician, and training family therapists, psychologists, and counselors around the world to help individuals and families suffering from the trauma of ambiguous loss and this form of grief that doesn't end.

We're also talking about the research team that successfully duplicated a patient's blood brain barrier — on a chip! A breakthrough that could streamline MS research, make drug screening easier, and help make personalized MS treatment a reality. We'll tell you about a study that evaluated an online version of a successful MS fall prevention program. You'll find out how you can be a part of people-powered MS research. And we'll tell you how MS-FOCUS and Lyft have teamed up to get you to your next MS care appointment.

We have a lot to talk about. Are you ready for RealTalk MS??!

NEW! Download a transcript of this episode!

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What is Ambiguous Loss…and Why Is It So Important? :22

Scientists Create Blood Brain Barrier on a Chip 4:32

The Free From Falls Online Program Is Evaluated 6:47

MS-FOCUS & Lyft Can Get You To Your Next Appointment 10:30

My Interview with Dr. Pauline Boss 13:28

Why You Might Want to Download the RealTalk MS App 31:55

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Ambiguous Loss, Pioneered by Dr. Pauline Boss

Books by Dr. Pauline Boss

Human iPSC-Derived Blood-Brain Barrier Chips Enable Disease Modeling and Personalized Medicine Applications

Evaluation of a Web-Based Fall Prevention Program Among People with Multiple Sclerosis

iConquer MS

MS-FOCUS Transportation Assistance Grant

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

NEW! Download a Transcript of This Episode

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RealTalk MS Episode 95
Hosted By: Jon Strum
Guest: Dr. Pauline Boss

Tags: MS, MultipleSclerosis, MSResearch, caregiving, iConquerMS, MS_FOCUS, Lyft, RealTalkMS

Episode 94: Shady Stem Cell Clinics And Their Shady “Clinical Trials” & An MS Rehab Study with Dr. Laura Rice

This week, we're talking about shady stem cell clinics and their shady clinical trials. We'll tell you about a study that makes a connection between stress-related disorders and autoimmune disease, and a research team that may have identified the possible genetic causes of MS.

Dr. Laura Rice

My guest is Dr. Laura Rice, an expert in rehabilitation science and technology at the University of Illinois, Urbana-Champagne. Dr. Rice's focus is on maximizing the quality of life and community participation among wheelchair users. We're talking with Dr. Rice about her new study, designed to prevent falls among wheelchair users.

We'll also tell you about the international team of scientists who succeeded in mapping human microglia, and were surprised by what they found. We'll get you up to speed on the Credit for Caring Act, a bipartisan bill that's been designed to give family caregivers a financial boost. And we'll tell you where to register for the MS Association of America's The Many Faces of MS: Exploring Diversity & Differences webinar, being hosted by Dr. Mitzi Joi Williams.

We have a lot to talk about. Are you ready for RealTalk MS??!

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Shady Stem Cell Clinics & Their Shady “Clinical Trials” 1:01

Seeing MS From the Inside Out documentary Wins an Award 6:42

Do Stress-Related Disorders Cause Autoimmune Disease? 8:27

A Study Identifies Possible Genetic Causes of MS 11:01

Scientists Successfully Map Microglia & See Differences in People Living with MS 13:00

The Bipartisan Credit for Caring Act Introduced in Both Houses of Congress 15:28

The Many Faces of MS: Exploring Diversity & Differences 17:20

My Interview with Dr. Laura Rice 19:35

Join the RealTalk MS Conversation 27:10

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