Past Podcast Episodes

Episode 129: MS Advocacy in 2020 with Bari Talente

In just two weeks, the National MS Society is hosting its annual Public Policy Conference in Washington, D.C. The centerpiece of that conference is our Day On The Hill when 300 MS Activists meet with our Congressional Representatives and Senators to discuss the legislative issues that are most important to people affected by MS.

My guest is Bari Talente, the Executive Vice President of Advocacy for the National MS Society and we're talking all about this year's Public Policy Conference and the value and importance of advocacy.

We'll also let you know how and where to sign up for Discovering Life-Changing Treatments for Progressive MS, the global webcast from the International Progressive MS Alliance. (You have to hurry! It's happening in 2 days!)

You'll hear about an encouraging study of the effectiveness of stem cell therapy for some people living with secondary progressive MS. We're also talking about why you might want to support Jon in this year's Walk MS. And you'll learn about a non-invasive breakthrough technology that provides a detailed assessment of the status of MS progression and the effectiveness of disease-modifying therapy…in 10 seconds.

We have a lot to talk about! Are you ready for RealTalk MS??!

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Sharing Some Crazy Statistics :44

We're Just 2 Weeks Away From the Public Policy Conference 2:27

You Can Support Jon in WALK MS 4:54

HSCT Shows Benefits in Some People with Secondary Progressive MS 6:23

New Eye-Tracking Tech Uses AI to Monitor MS 9:09

My Interview with Bari Talente 11:54

Share This Episode 26:03

Reminder…Please Donate to Walk MS 26:28

Download the RealTalk MS App 27:03

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Just copy this link & paste it into your text or email: https://realtalkms.com/129

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Jon's WALK MS Fundraising Page

Register for the International Progressive MS Alliance Global Webcast: Discovering Life-Changing Treatments for Progressive MS

Low-Intensity Lympho-Ablative Regimen Followed by Autologous Hematopoietic Stem Cell Transplantation in Severe Forms of Multiple Sclerosis: A MRI-Based Clinical Study

BEAT-MS Clinical Trial

C. Light Technologies

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Give RealTalk MS a Rating & Review

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RealTalk MS Episode 129
Hosted By: Jon Strum
Guests: Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, RealTalkMS

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Episode 128: Pregnancy & MS with Dr. Riley Bove

My guest is Dr. Riley Bove, and we're talking about some of the things you might want to consider when you're thinking about getting pregnant, some important things to consider when you are pregnant, some things to discuss when you and your doctor are planning your delivery, and things to be aware of following your pregnancy.

We're also talking about the results of two different studies that underscore the important relationship between the gut and MS.

We'll give you a few different opportunities to participate in MS research, and we'll remind you about why your participation is important.

And we'll share the sobering results of a large study that serves to remind everyone why diagnosing and treating depression among people living with MS should be a priority.

We have a lot to talk about! Are you ready for RealTalk MS??!

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Changes to Medicaid Could Impact Families Affected by MS 1:11

Study Shows Positive Effects of Probiotics in MS 5:04

Study Shows Reducing This Amino Acid in Your Diet Could Delay Onset & Progression of MS 7:17

Opportunities for You to Participate in MS Research 10:48

Study Shows People Living with MS at Higher Risk of Death by Suicide 14:13

My Interview with Dr. Riley Bove 17:26

Share This Episode 29:31

Download the RealTalk MS App 30:02

___________

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/128

___________

ADD YOUR VOICE TO THE CONVERSATION

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Jon's WALK MS Fundraising Page

EMD Serono & MyHealthTeams Family Planning Resource Center

STUDY: Immunomodulatory and Anti-Inflammatory Effects of Probiotics in Multiple Sclerosis: A Systematic Review

STUDY: Methionine Metabolism Shapes T Helper Cell Responses Through Regulation of Epigenetic Reprogramming

Participate in Research: Health Behaviors in Adults with MS Who Use Wheelchairs –
Contact Stephanie Silveira, enrl@uabmc.edu or (205) 975-1306

Participate in Research: Health Beliefs & Physical Activity

Participate in Research: The iConquer MS Patient-Powered Research Database

STUDY: Association Between Neurological Disorders and Death by Suicide in Denmark

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

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