Past Podcast Episodes

The Multiple Sclerosis Association of America, or MSAA, provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI exam, a new computer, mobility equipment, or even a cooling vest, the MSAA can help.

My guest today is Gina Murdoch, the President and CEO of the MSAA, and we're talking about the organization's almost 50-year history, their shared management philosophy of living with MS, and we're taking a deeper dive into into some of their remarkable programs.

Gina Murdoch

We're also talking about the Progressive MS Alliance Scientific Steering Committee Meeting that begins tomorrow in Copenhagen, Denmark. You'll hear about the Patient 360 meeting that EMD Serono hosted last week in Washington, D.C., and I'll tell you why that meeting was so special to me.

We're talking about the just announced $100,000 research grant to investigate the challenges faced by people of color who are living with MS and their caregivers. You'll learn about the special search engine that matches MS patients with financial support for disease-modifying therapy.

We'll tell you about 2 new programs from Can-Do MS, focused on young adults who are living with MS and people who are living with secondary progressive MS. And you'll find out how you can be my special guest on the 100th episode of RealTalk MS.

We have a lot to talk about. Are you ready for RealTalk MS??!

Progressive MS Alliance Scientific Steering Committee Meeting in Copenhagen :22

EMD Serono Hosts Patient 360 Meeting 2:27

Accelerated Cure Project & Us Against Alzheimer's Receive $100,000 Grant to Study Challenges Faced by People of Color Living with MS & Alzheimer's Disease 6:07

MAT Can Connect You to Financial Support for Disease-Modifying Therapy 7:53

Can-Do MS Announces Programs for Young Adults Living with MS and People Living with Secondary Progressive MS 9:58

Finalists Announced for Lyfebulb-Celgene Addressing Unmet Needs in MS: Innovation Challenge 12:22

My Interview with MSAA's Gina Murdoch 16:13

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

International Progressive MS Alliance

Multiple Sclerosis Association of America

MAT (Medicine Assistance Tool)

Can-Do MS Young Adults Take Charge Program

Can-Do MS Secondary Progressive MS Webinar Series

Celgene Lyfebulb MS Innovation Challenge

Be My Guest on RealTalk MS Episode #100

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 90
Hosted By: Jon Strum
Guest: Gina Murdoch

Tags: MS, MultipleSclerosis, MSResearch, ProgressiveMS, CanDoMS, MSAA, EMDSerono, Celgene, Lyfebulb, Caregiving, RealTalkMS

I get a lot of listener questions about exercise and MS. And a lot of those questions come from people living with progressive MS, wondering whether the conversation about physical activity and MS applies to them.

My guest this week is Dr. Lara Pilutti, an expert in the role of exercise in the management and treatment of disability arising from multiple sclerosis. We're talking about how you want to be thinking about exercise and why you want to be thinking about exercise, whether you're living with relapsing-remitting MS or progressive MS.

Dr. Lara Pilutti

We're also talking about this year's winner of the Dystel Prize for MS Research. We'll tell you about the long overdue approval of Ocrevus to treat early primary progressive MS in the U.K. You'll hear about the French research team that has found a connection between ancient retroviruses and MS. And we'll tell you about legislation introduced in Congress that's supposed to protect people with pre-existing conditions…but doesn't!

We have a lot to talk about. Are you ready for RealTalk MS??!

Now You Can Find RealTalk MS on Pandora :53

Download the Free RealTalk MS App 1:18

You Can Be My Special Guest on RealTalk MS Episode #100 2:09

Dystel Prize for MS Research Awarded to Dr. Anne Cross 4:17

Ocrevus (Finally!) Approved in the U.K. for Treatment of Early Primary Progressive MS 6:10

Researchers Find a Connection Between Ancient Retroviruses and MS 7:12

Republican Legislators Introduce Bills That Protect People with Pre-Existing Conditions…Or Do They???! 8:25

My Interview with Dr. Lara Pilutti 14:53

___________

ADD YOUR VOICE TO THE CONVERSATION

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Be My Guest on RealTalk MS Episode #100

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 89
Hosted By: Jon Strum
Guest: Dr. Lara Pilutti

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Ocrevus, ProtectOurCare, Caregiving, RealTalkMS

Episode 90: The MS Association of America with President & CEO Gina Murdoch

Episode 89: Exercise & MS with Dr. Lara Pilutti