RealTalk MS

Past Podcast Episodes

Episode 118: MS Sucks: Singing for a Cure with Stubhy Pandav


My guest is Stubhy Pandav, the lead singer of Lucky Boys Confusion and The Hoodie Life. Last year, Stubhy was diagnosed with MS. Then, Stubhy's insurance company told him that he couldn't start the disease-modifying therapy that his neurologist had prescribed.
We'll talk with Stubhy about how he's managed to navigate this first year since his MS diagnosis, and we'll also talk with him about MS Sucks: Singing for a Cure, a benefit concert that's raising funds for the Accelerated Cure Project for MS.

Stubhy Pandav

We're also talking about the warning that the FDA just issued about CBD. And we'll tell you why two Harvard neurologists have announced that it's time to re-think how neurologists treat MS.
If you've wondered why the cost of MS medications seems to be constantly rising, we'll tell you what a research team from Oregon State University discovered. And we'll tell you where you can sign up for the upcoming webinar, “Debunking Diet Myths.”

We have a lot to talk about! Are you ready for RealTalk MS??!
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Home for the Holidays  :22

FDA Issues Warning About CBD  2:29

Harvard Neurologists Say It's Time to Re-Think MS Treatment Approach    5:39

What Really Drives Up the Price of MS Medications?   8:29

Webinar: Debunking Diet Myths  13:12

My Interview with Stubhy Pandav  14:48

Share This Episode  31:46

How to Subscribe to RealTalk MS, Download the RealTalk MS App, and Listen with Alexa  32:12

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SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:  https://realtalkms.com/118

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review 

MS Sucks: Singing For a Cure

RealTalk MS Episode 74: Dr. Aaron Boster & The Induction vs Escalation MS Treatment Philosophy

An Argument for Broad Use of High Efficacy Treatments in Early Multiple Sclerosis

Qualitative Study on the Price of Drugs for Multiple Sclerosis: Gaming the System

Can-Do MS & National MS Society Webinar Registration: Debunking Diet Myths

Give RealTalk MS a Rating & Review 

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 118
Hosted By: Jon Strum
Guests: Stubhy Pandav

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, CBD, Cannabis, RealTalkMS

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Episode 117: Caregiver Strategies with Penny Patnaude


November is National Family Caregiver Month, and while I was at the 4th Annual National Caregiving Conference in Chicago, I met this week's guest, Caregiver Strategist Penny Patnaude. Penny and I talked about some of the things that caregivers want to be thinking about in planning their own strategy for providing great care to their loved one without losing themselves in the process.

Penny Patnaude

I'll also introduce you to Dr. Lindsey Knowles, a young MS rehabilitation researcher who will give us an insider's look at what the Tykeson Fellows Conference is all about, and why it's so important for the future of MS research.

We're also talking about the cannabis-based treatment for MS spasticity that was approved in the U.K. You'll hear about last week's International Progressive MS Alliance meeting in Amsterdam, and we'll tell you about an investigational therapy that can reset the immune system in the mouse model of MS in a single dose.

We'll remind you that if you're a young adult, between 18 and 45 years old, First Descents is offering you a week-long ski trip to Crested Butte, Colorado. And it's FREE! (Don't worry, we'll tell you how and where to begin the application process!)

You'll hear about the research team in Montreal that may have found a way to stop MS progression.

And we'll tell you how easy it is to share this episode of RealTalk MS with family and friends!

We have a lot to talk about! Are you ready for RealTalk MS??!
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Thanks for all the kind words!   :22

The National MS Society & RealTalk MS Partnership  :52

Join the Conversation! Get In Touch with RealTalk MS    2:21

The Progressive MS Alliance Meeting in Amsterdam   3:32

The Tykeson Fellows Conference & My Conversation with Dr. Lindsey Knowles  5:26

Sativex Approved in U.K. for MS Spasticity  11:12

Single Dose of Investigational Therapy Resets the Immune System in Mouse-Model of MS  13:19

First Descents Offers a FREE Ski Trip to Crested Butte to Young Adults Living with MS  15:39

Canadian Research Team Says They May Be Able to Stop MS Progression  17:51

My Interview with Caregiver Strategist Penny Patnaude  19:51

Share This Episode  27:11

How to Subscribe to RealTalk MS, Download the RealTalk MS App, or Listen with Alexa  27:36

___________

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email:  https://realtalkms.com/117

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review 

The National MS Society & RealTalk MS Announce a Partnership

The International Progressive MS Alliance

Administration of a CD45 Antibody Drug Conjugate as a Novel, Targeted Approach to Achieve Immune System Reset: A Single Dose of CD45-targeted ADC Safely Conditions for Autologous Transplant and Ameliorates Disease in Multiple Models of Immune Disease

First Descents Skiing at Crested Butte

Activated Leukocyte Cell Adhesion Molecule Regulates B Lymphocyte Migration Across Central Nervous System Barriers

The Caregiver Strategist

Give RealTalk MS a Rating & Review 

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 117
Hosted By: Jon Strum
Guests: Penny Patnaude

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, Caregiving, Sativex, Stemcells, FirstDescents, RealTalkMS

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