RealTalk MS

Past Podcast Episodes

Episode 77: With Shift.ms Founder George Pepper & Shift.ms Community Member Aoife Kirwan


George Pepper was diagnosed with multiple sclerosis in 2009, at the age of 22. He initially found it difficult to connect with others his own age who were living with MS, so George set up a website where people living with MS could meet and share their experiences. That website evolved into an online community called shift.ms, and today, more than 18,000 people participate in the shift.ms community. My guests today are the founder of shift.ms, George Pepper, and Aoife Kirwan, a member of the shift.ms community.

George Pepper

We're also talking about a new report that reminds us that there's a lot of fake health news online, how Medicare rules are costing people living with MS more money, a global response to talking about sex and MS, and a study that will introduce you to the Caregiver Strain Index, a reliable tool in measuring MS caregiver burden.

We have a lot to talk about! Are you ready for RealTalk MS?!
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A solution to Loneliness & MS   :23

Study Results Warn Against “Fake Online Health News”  2:48

Medicare Policies Cost People With MS More Money  8:50

MS International Federation Talks About Sex & MS  12:57

Caregiver Strain Index Is A Valid Measurement of Caregiver Burden  14:33

My Interview with George Pepper & Aoife Kirwan  18:24

Join The RealTalk MS Conversation  30:25

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JOIN THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jonstrum@RealTalkMS.com
Phone: (310) 526-2283

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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

The Most Popular Health Articles of 2018: A Scientific Credibility Review

Trends in Coverage for Disease-Modifying Therapies for Multiple Sclerosis in Medicare Part D

Sex Life & MS

Measuring Burden in Caregivers of People with Multiple Sclerosis: Psychometric Properties of the CSI Questionnaire

Shift.ms

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 77
Hosted By: Jon Strum
Guest: George Pepper & Aoife Kirwan

Tags: MS, MultipleSclerosis, MSResearch, Caregiving, ShiftMS, MSIntFederation, RealTalkMS

 

Episode 76: MS Rehabilitation With Dr. Deborah Backus


One of the best ways to maintain physical function, manage the effect of some MS symptoms, and even offset depression is exercise. My guest is Dr. Deborah Backus, the director of Multiple Sclerosis Research at the Shepherd Center in Atlanta. We're discussing the importance of early rehabilitation, the difference that exercise can make for people living with MS, and STEP FOR MS — an important clinical trial that may turn out to be a game-changer for MS rehabilitation.

We're also talking about what people living with MS need to know about polypharmacy, a new transportation pilot project that's designed to make life easier for people living with MS, why an MS caregiver also needs to be an advocate, what happens when an MS caregiver ignores self-care, and a new clinical trial that will look at non-pharmacological approaches to managing MS chronic pain.

We have a lot to talk about! Are you ready for RealTalk MS?!

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Join the RealTalk MS Conversation   :22

Polypharmacy & Relapsing-Remitting MS  2:39

MS FOCUS's Transportation Pilot Project  6:21

What It Means For an MS Caregiver To Be An Advocate  8:06

What Happens When an MS Caregiver Ignores Self-Care  12:16

Clinical Trial to Study Non-Pharmacological Approaches to Managing Chronic MS Pain Is Recruiting  14:53

My Interview with Dr. Deborah Backus  18:04

Download the RealTalk MS App  33:05

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jonstrum@RealTalkMS.com

Phone: (310) 526-2283

___________

LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

Polypharmacy in Outpatients With Relapsing-Remitting Multiple Sclerosis: A Single-Center Study

Investigators Recruiting People With MS Nationwide To Test Approaches to Managing Chronic Pain:
Email: msadapt@uw.edu
Phone: (855) 320-8230

STEP FOR MS Study

STEP FOR MS Eligibility & Study Sites

Shepherd Center

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 76
Hosted By: Jon Strum
Guest: Dr. Deborah Backus

Tags: MS, MultipleSclerosis, MSResearch, Caregiving, StepForMS, ShepherdCenter, RealTalkMS