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Past Podcast Episodes

Episode 106: Palliative Care for MS with Cherie Binns, RN, MSCN


This week, we're talking about palliative care for MS. It's a topic that a lot of people living with MS still don't know enough about, but palliative care can offer real benefits in attaining the best overall quality of life.

Joining me in discussing palliative care is my guest, Cherie Binns. Cherie was diagnosed with relapsing-remitting MS in 1994. She's been a Registered Nurse for 45 years, and Cherie is also an Internationally Certified MS Nurse. Cherie serves as the co-chair of the iConquerMS Research committee, and she regularly presents programs on living well with MS.

Cherie Binns

We'll also remind you that beginning tomorrow, you can listen to daily episodes of RealTalk MS directly from ECTRIMS 2019 in Stockholm, Sweden. I'll do my best to keep you updated on the announcements being made, the presentations being given, and the news coming out of the largest MS research conference in the world. We'll even tell you how you can catch a couple of sessions that will be webcast live from ECTRIMS 2019.

We have a lot to talk about! Are you ready for RealTalk MS??!
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The Ambassadors Ball Is Happening Tonight!  :22

Beginning Tomorrow: Special RealTalk MS Episodes from ECTRIMS 2019   1:26

Catch Sessions from ECTRIMS on the Live Webcast   1:57

Palliative Care for MS with Cherie Binns, RN, MSCN  3:09

Download the RealTalk MS App  23:16

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review 

Live Webcasts from ECTRIMS 2019

National MS Society MS Navigators

GetPalliativeCare.org

Give RealTalk MS a Rating & Review 

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 106
Hosted By: Jon Strum
Guest: Cherie Binns, RN, MSCN

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, PalliativeCare, ECTRIMS2019, RealTalkMS

 

Filed Under: Uncategorized

Episode 105: BBQ For MS? It’s the Southern Smoke Festival with Chris Shepherd


Five years ago, James Beard Award-winning chef Chris Shepherd decided to hold a barbecue event in his restaurant's parking lot, to raise money for the National MS Society. Today, the Southern Smoke Festival has grown into the largest 3rd party MS Society fundraising event in the United States, and with the 5th Annual Southern Smoke Festival just a few weeks away, we're talking with Chris about how this event got its start, and how it's grown to be one of the most noteworthy culinary events in the country.

Southern Smoke Festival

We're also talking about the new vaccination guidelines (including flu shots!) that were just published by the American Academy of Neurology for people living with MS. We'll tell you about a study that gives you one more reason to start disease-modifying therapy early…and stay on it! We'll also tell you about a study that shows the cost of MS disease-modifying therapy has increased 7X over just 10 years for Medicare patients. And we've found one more study that demonstrates how people with more advanced progressive MS can still benefit from physical rehabilitation.

We have a lot to talk about! Are you ready for RealTalk MS??!
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Where You Can Find Me in September  :32

American Academy of Neurology Issues Vaccination Guidelines for People Living with MS   4:39

The Long-Term Effects of Disease-Modifying Therapy   6:15

DMT Costs Increase 7X in 10 Years for Medicare Patients  7:49

Upper-Limb Task-Oriented Rehab Shows Benefits for People Living with Progressive MS  11:56

My Interview with Chris Shepherd  15:01

Subscribe to RealTalk MS or Just Ask Alexa  27:13

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Give RealTalk MS a Rating & Review 

Southern Smoke Festival

Practice Guideline Update Summary: Vaccine-Preventable Infections and Immunization in Multiple Sclerosis — Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology

The Long-Term Effects of Disease-Modifying Therapies on Disability in People Living with Multiple Sclerosis: A Systematic Review and Meta-Analysis

Trends in Prices, Market Share, and Spending on Self-Administered Disease-Modifying Therapies for Multiple Sclerosis in Medicare Part D

Preserved Brain Functional Plasticity After Upper Limb Task-Oriented Rehabilitation in Progressive Multiple Sclerosis

Give RealTalk MS a Rating & Review 

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 105
Hosted By: Jon Strum
Guest: Chris Shepherd

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, SouthernSmokeTX, RealTalkMS

 

Filed Under: Uncategorized

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