Past Podcast Episodes

Episode 63: Overcoming Caregiving Challenges with Dr. Amy Sullivan

Caregiving carries a lot of challenges. And for some people, it can feel overwhelming. So, what are the things that make being a caregiver for someone living with a chronic illness like MS so challenging?

We're kicking off National Family Caregivers Month with my guest, Dr. Amy Sullivan, Director of Behavioral Medicine, Research and Training at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic, and we're talking about how to best navigate some of the challenges that go along with being a caregiver for someone living with MS.

We're also talking about today's election in the U.S., and what it means for people living with MS, the unresolved status of Ocrevus as a treatment for primary progressive MS in the UK, and the fast-tracking of Mavenclad in the UK. We'll tell you about the bus driver who stood up for a man with MS, an insurance company that will fly people to Mexico and pay them a cash bonus to buy their MS prescription medications there, and we'll share results from the Embracing Carers International Survey.

We have a lot to talk about! Are you ready for RealTalk MS?!

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It's Election Day in the U.S. (and what that means for people living with MS!) :22

The Bus Driver Who Stood Up for a Man with MS 2:49

An Insurer Will Fly People with MS to Mexico to Buy Their Prescription Drugs 4:00

Ocrevus On Hold for People with Primary Progressive MS in the UK 5:49

Mavenclad Fast-Tracked in the UK 7:59

Embracing Carers Campaign & Can Do MS Announce a New Collaboration 9:42

Embracing Carers International Survey Results 10:52

Interview with Dr. Amy Sullivan 12:55

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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

RealTalk MS Congressional Report Card

CanDo-MS Embracing Carers Program

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 63
Hosted By: Jon Strum
Guest: Dr. Amy Sullivan

Tags: MS, MultipleSclerosis, MSActivist, DrAmyBSullivan, ClevelandClinic, Caregiving, Caregiver, Ocrevus, Mavenclad, EMDSerono, EmbracingCarers, CanDoMS, RealTalkMS

Episode 62: New Guidelines for Managing MS Cognitive Dysfunction with Dr. John DeLuca

Cognitive dysfunction can profoundly affect people living with MS, yet it's frequently overlooked and left untreated. That's why the National MS Society convened a working group of world-class experts to explore how cognitive dysfunction was being assessed and to develop a set of guidelines designed to improve the process of cognitive screening and management in MS care.

My guest is Dr. John DeLuca, the Senior Vice-President of Research & Training at the Kessler Foundation, and the co-author of the just-published report that details this important set of new guidelines.

We're also making an exciting announcement with the Accelerated Cure Project for MS about the RealTalk MS podcast. We're talking about how you can prepare for next week's midterm election in the U.S., we'll tell you how the Federal Trade Commission went after 2 crooked stem cell clinics that claimed they were curing MS, we'll give you a heads-up about MS stem cells that really are heading for outer space, and you'll hear about an investment that the National MS Society made in some exciting cutting-edge commercial biotech research.

We have a lot to talk about! Are you ready for RealTalk MS?!

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Some Exciting News About RealTalk MS 2:16

How You Can Prepare to Vote in the U.S. Next Week 4:10

2 Phony Stem Cell Clinics Caught Defrauding Patients 10:09

MS Stem Cells Are Headed for Outer Space 14:22

National MS Society Invests in Cutting-Edge Commercial BioTech Research 16:20

Interview with Dr. John DeLuca 17:58

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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes
in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

iConquerMS

RealTalk MS Congressional Report Card

FTC Complaint Against Dr. Bryn Jarald Henderson's Stem Cell Clinics

Recommendations for Cognitive Screening and Management in Multiple Sclerosis Care

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 62
Hosted By: Jon Strum
Guest: Dr. John DeLuca

Tags: MS, MultipleSclerosis, MSActivist, Election2018, iConquerMS, KesslerFdn, RealTalkMS