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Past Podcast Episodes

Episode 95: Ambiguous Loss with Dr. Pauline Boss


How do you adjust every aspect of your relationship when the partner you've known seems to be vanishing right before your eyes, yet they're still very much there? If you're a caregiver for someone with progressive MS, or any chronic illness, it's very likely that you're living with the trauma of ambiguous loss.

Ambiguous Loss

My guest is Dr. Pauline Boss, who not only coined the phrase ambiguous loss, but has spent her career teaching university students, practicing as a clinician, and training family therapists, psychologists, and counselors around the world to help individuals and families suffering from the trauma of ambiguous loss and this form of grief that doesn't end.

We're also talking about the research team that successfully duplicated a patient's blood brain barrier — on a chip! A breakthrough that could streamline MS research, make drug screening easier, and help make personalized MS treatment a reality. We'll tell you about a study that evaluated an online version of a successful MS fall prevention program. You'll find out how you can be a part of people-powered MS research. And we'll tell you how MS-FOCUS and Lyft have teamed up to get you to your next MS care appointment.

We have a lot to talk about. Are you ready for RealTalk MS??!

NEW! Download a transcript of this episode!

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What is Ambiguous Loss…and Why Is It So Important?  :22

Scientists Create Blood Brain Barrier on a Chip  4:32

The Free From Falls Online Program Is Evaluated   6:47

Register with iConquer MS & Be a Part of People-Powered MS Research  9:31

MS-FOCUS & Lyft Can Get You To Your Next Appointment  10:30

My Interview with Dr. Pauline Boss 13:28

Why You Might Want to Download the RealTalk MS App  31:55

 ___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Ambiguous Loss, Pioneered by Dr. Pauline Boss

Books by Dr. Pauline Boss

Human iPSC-Derived Blood-Brain Barrier Chips Enable Disease Modeling and Personalized Medicine Applications

Evaluation of a Web-Based Fall Prevention Program Among People with Multiple Sclerosis

iConquer MS

MS-FOCUS Transportation Assistance Grant

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review 

NEW! Download a Transcript of This Episode

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 95
Hosted By: Jon Strum
Guest: Dr. Pauline Boss

Tags: MS, MultipleSclerosis, MSResearch, caregiving, iConquerMS, MS_FOCUS, Lyft, RealTalkMS

 

Filed Under: Uncategorized

Episode 94: Shady Stem Cell Clinics And Their Shady “Clinical Trials” & An MS Rehab Study with Dr. Laura Rice


This week, we're talking about shady stem cell clinics and their shady clinical trials. We'll tell you about a study that makes a connection between stress-related disorders and autoimmune disease, and a research team that may have identified the possible genetic causes of MS.

Dr. Laura Rice

My guest is Dr. Laura Rice, an expert in rehabilitation science and technology at the University of Illinois, Urbana-Champagne. Dr. Rice's focus is on maximizing the quality of life and community participation among wheelchair users. We're talking with Dr. Rice about her new study, designed to prevent falls among wheelchair users.

We'll also tell you about the international team of scientists who succeeded in mapping human microglia, and were surprised by what they found. We'll get you up to speed on the Credit for Caring Act, a bipartisan bill that's been designed to give family caregivers a financial boost. And we'll tell you where to register for the MS Association of America's The Many Faces of MS: Exploring Diversity & Differences webinar, being hosted by Dr. Mitzi Joi Williams.

We have a lot to talk about. Are you ready for RealTalk MS??!

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Shady Stem Cell Clinics & Their Shady “Clinical Trials”  1:01

Seeing MS From the Inside Out documentary Wins an Award  6:42

Do Stress-Related Disorders Cause Autoimmune Disease?   8:27

A Study Identifies Possible Genetic Causes of MS  11:01

Scientists Successfully Map Microglia & See Differences in People Living with MS  13:00

The Bipartisan Credit for Caring Act Introduced in Both Houses of Congress  15:28

The Many Faces of MS: Exploring Diversity & Differences  17:20

My Interview with Dr. Laura Rice  19:35

Join the RealTalk MS Conversation  27:10

___________

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

___________

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

ClinicalTrials.gov

STUDY: Association of Stress-Related Disorders With Subsequent Autoimmune Disease

STUDY: Exome Sequencing in Multiple Sclerosis Families Identifies 12 Candidate Genes and Nominates Biological Pathways for the Genesis of Disease

STUDY: Spacial and Temporal Heterogeneity of Mouse and Human Microglia at Single-Cell Resolution

The Credit for Caring Act

REGISTER: The Many Faces of MS: Exploring Diversity and Differences

Email Dr. Laura Rice

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review 

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 94
Hosted By: Jon Strum
Guest: Dr. Laura Rice

Tags: MS, MultipleSclerosis, MSResearch, Stemcells, caregiving,  RealTalkMS

Filed Under: Uncategorized

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