Past Podcast Episodes

Episode 80: Access to Affordable MS Medications with MS Activist Diane Whitcraft

My guest this week is Diane Whitcraft, a retired middle school teacher who had been taking the same MS prescription medication for more than 20 years. But once Diane retired and her health insurance changed, that same medication became unaffordable.

Diane traveled to Washington D.C. last month, as Wisconsin Senator Tammy Baldwin's guest at the President's State of the Union address. She is back in our nation's capitol this week, speaking at the National MS Society's Public Policy Conference about the importance of having access to affordable MS prescription medications.

Senator Tammy Baldwin (right) and Diane Whitcraft

We're also talking about the official statement on stem cell therapy for MS by The American Society for Blood & Marrow Transplantation. We'll tell you about a new study that measured the impact of diet and other lifestyle factors on MS progression, you'll hear about a different study that highlighted the large percentage of people who are being misdiagnosed with MS, and you'll learn how some new emojis will help to de-stigmatize disability.

We have a lot to talk about! Are you ready for RealTalk MS?!

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It's Our Day on the Hill :57

The American Society for Blood & Marrow Transplantation Makes an Official Statement About Stem Cell Therapy for MS 2:48

STUDY: The Impact of Diet & Lifestyle Factors on MS Progression 5:47

STUDY: 1 in 5 Patients Referred to 2 Academic MS Centers Are Misdiagnosed 8:17

How New Emojis Can Help De-Stigmatize Disability 5:47

My Interview with MS Activist Diane Whitcraft 12:36

Join the RealTalk MS Conversation 28:43

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jonstrum@RealTalkMS.com
Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

Autologous Hematopoietic Cell Transplantation for Treatment-Refractory Relapsing Multiple Sclerosis: Position Statement From the American Society For Blood and Marrow Transplantation

Dietary and Lifestyle Factors in Multiple Sclerosis Progression: Results from a 5-Year Longitudinal MRI Study

Incidence of Misdiagnosis of Multiple Sclerosis in Referrals to Two Academic Centers

Preview the New Emojis That Will Help to De-Stigmatize Disability

National Multiple Sclerosis Society: Advocate For Change

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 80
Hosted By: Jon Strum
Guest: Diane Whitcraft

Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, MSPPC19, RealTalkMS

Episode 79: Caregiver Assurance — A Better Way of Connecting Caregivers to the Support They Need

No matter what sort of challenge a caregiver may be facing — financial, emotional, or just trying to find the right resources at the right time, every caregiver challenge is made more difficult by that accompanying feeling of isolation that so many caregivers experience.

My guest is Heidi Telschow, manager of Fairview Health Services' Caregiver Assurance program, a unique program designed to seamlessly connect caregivers to the resources they need.

We're also talking about the eye-popping increase in the prevalence of MS in the United States, now reaching nearly one million adults. We'll tell you about a study that shows how the early use of more intensive MS disease-modifying therapy may provide better outcomes for people living with MS, you'll hear about an Innovation Challenge that could reward your inner entrepreneur with $25,000 in cash, and we'll tell you why the FDA has been asked to fast-track a cannabis-based treatment for spasticity in progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS?!

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STUDY: MS Prevalence In the United States Nears 1 Million 2:18

STUDY: Long-Term Benefit Seen in Early Use of More Intensive Disease-Modifying Therapy 5:42

Lyfebulb-Celgene Innovation Challenge in MS 9:04

FDA Requested to Fast-Track Cannabis-Based Treatment for Spasticity in Progressive MS 10:43

My Interview with Heidi Telschow from Caregiver Assurance 12:36

___________

ADD YOUR VOICE TO THE CONVERSATION

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jonstrum@RealTalkMS.com
Phone: (310) 526-2283

___________

LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with Multiple Sclerosis

Validation of an Algorithm for Identifying MS Cases in Administrative Health Claims Datasets

The Prevalence of Multiple Sclerosis in the United States: A Population-Based Estimate Using Health Claims Data

RealTalk MS Episode 74: Induction vs Escalation Therapy with Dr. Aaron Boster

Clinical Outcomes of Escalation vs Early Intensive Disease-Modifying Therapy in Patients With Multiple Sclerosis

Application for Lyfebulb-Celgene Innovation Challenge in MS

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 79
Hosted By: Jon Strum
Guest: Heidi Telschow