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Past Podcast Episodes

Episode 387: Inside the TEAAMS Study with Ashli and Victoria



The TEAAMS study examines the effects of a remotely delivered, racially-tailored exercise training program among African-Americans with MS, who are living in low-income areas of the Southeastern United States, which is a part of the country that doesn't have many primary care or MS clinics that provide full exercise and rehabilitation services for patients with MS.

TEAAMS

Ashli, who lives with MS and has completed the TEAAMS program, and Victoria, a behavioral coach who has worked with several study participants, join me this week to share their experiences in the study.

We're also talking about a new Phase1/2 clinical trial for another investigative CAR-T therapy. (And we'll explain what a Phase 1/2 trial is)

We'll tell you about TG Therapeutics' plans for Briumvi, as well as their investigative CAR-T therapy.

We'll tell you about the Phase 2 clinical trial Contineum Therapeutics' oral remyelination therapy.

We'll share the details of a study that shows ballroom dancing delivers both physical and psychological benefits to people with MS.

We'll share some potentially good news about managing MS-related fatigue.

And we'll give you a new opportunity to participate in MS research.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Inside the TEAAMS study  :22

Cabaletta Bio announces Phase 1/2 trial for CAR-T therapy  1:45

TG Therapeutics will develop an injectable formulation for Briumvi  5:45

Contineum Therapeutics completes recruitment for Phase 2 trial for an oral remyelination therapy  7:52

Study shows that ballroom dancing delivers physical and psychological benefits for people with MS  9:05

Study shows that Elevida, an online German fatigue intervention, significantly reduces MS-related fatigue   11:32

Ashli and Victoria share their experience in the TEAAMS study    15:37

Share this episode  32:57

Have you downloaded the free RealTalk MS app?  33:17


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/387

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube
https://www.youtube.com/@RealTalkMS

STUDY: Ballroom Dancing for People with Multiple Sclerosis: Perceptions of the Experience
https://meridian.allenpress.com/ijmsc/article/26/Q4/355/504470/Ballroom-Dancing-for-People-With-Multiple

PARTICIPATE IN MS RESEARCH: Targeted Exercise for African-Americans with Multiple Sclerosis (TEAAMS)
https://projectteaams.ahs.uic.edu/

PARTICIPATE IN MS RESEARCH: Confirmatory Trial for Alleviating Fatigue in MS (CAFE-MS)
https://cafems.iconquerms.org/

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 387
Guests: Ashli and Victoria

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Filed Under: Uncategorized

Episode 386: When to Seek Immediate Medical Care for MS with Dr. Kalina Sanders


MS symptoms can worsen, and relapses can occur. And when that happens, how do you know whether you require immediate medical care? When is it time to go to the hospital? Dr. Kalina Sanders joins me to talk about when it's time to seek immediate medical care for MS.

Dr. Kalina Sanders

Dr. Sanders is a board-certified neurologist who specializes in multiple sclerosis and spasticity management at Baptist Health in Jacksonville Beach, Florida.

We're also talking about MS care in the United Arab Emirates with Professor Bassem Yamout, the President of the Middle East North Africa Committee for Treatment and Research in Multiple Sclerosis.

We'll explain why Bayer's new MRI contrast agent is good news for people with MS.

We'll tell you about a new Federal Trade Commission report that calls out Pharmacy Benefit Managers for inflating the price of generic specialty drugs by thousands of percent.

We'll share the details of a study that shows the profound impact of menopause on MS.

And we're sharing two different opportunities for you to participate in MS research.

We have a lot to talk about! Are you ready for RealTalk MS??!


A word about Facebook posts  :22

This Week: Worsening symptoms? Relapse? When is it time to go to the Emergency Room?  1:46

FTC reports Pharmacy Benefit Managers have marked up generic specialty drugs 1000s of percent  2:20

Bayer's new MRI contrast agent contains 60% less gadolinium  4:57

Professor Bassem Yamout discusses MS in the United Arab Emirates  6:48

Study reveals menopause significantly increases the speed of disability worsening and brain cell damage in women with MS  15:08

Two opportunities for you to participate in MS research  17:38

Dr. Kalina Sanders explains when it's time to seek immediate medical care for MS     19:54

Share this episode  31:42

Have you downloaded the free RealTalk MS app?  32:02


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/386

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS on YouTube
https://www.youtube.com/@RealTalkMS

Federal Trade Commission Interim Report on Pharmacy Benefit Managers and Specialty Generic Drugs
https://www.ftc.gov/reports/specialty-generic-drugs-growing-profit-center-vertically-integrated-pharmacy-benefit-managers

Bayer Announces MRI Contrast Agent Gadoquatrane Meets Primary and Main Secondary Endpoints in Pivotal Phase III Studies
https://www.businesswire.com/news/home/20250109869429/en/Bayers-investigational-MRI-contrast-agent-gadoquatrane-meets-primary-and-main-secondary-endpoints-in-pivotal-Phase-III-studies

STUDY: Association of Menopause with Functional Outcomes and Disease Biomarkers in Women with Multiple Sclerosis
https://www.neurology.org/doi/10.1212/WNL.0000000000210228

PARTICIPATE IN MS RESEARCH: Psychometric Properties of Sexual Difficulties Scales in People Living with Multiple Sclerosis
https://qualtrics.kcl.ac.uk/jfe/form/SV_br1fVoYGqXnLooK

PARTICIPATE IN MS RESEARCH: Efficacy and Safety Study of Frexalimab in Adults with Nonrelapsing Secondary Progressive Multiple Sclerosis
https://www.sanofistudies.com/SR0A/

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 386
Guests: Professor Bassem Yamout, Dr. Kalina Sanders

Privacy Policy

Filed Under: Uncategorized

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