RealTalk MS

Past Podcast Episodes

Episode 78: The Importance of MS Advocacy with Bari Talente


Over the past year, we've seen our access to affordable, quality healthcare come under unprecedented attack. We've seen a federal judge declare the Affordable Care Act to be unconstitutional. And we continue to see our access to affordable prescription medications — the medications that have been shown to delay the progression of MS and extend the quality of life for everyone living with MS — that access remains threatened by the constant skyrocketing cost of those medications. That's why advocating on behalf of our own interests is so important to the MS community.

Bari Talente

My guest this week is Bari Talente, the Executive Vice-President of Advocacy for the National Multiple Sclerosis Society. We're talking about the National MS Society's upcoming Public Policy Conference, the legislative issues that affect people living with MS in the United States, and the importance of MS advocacy.
We have a lot to talk about! Are you ready for RealTalk MS?!

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: jonstrum@RealTalkMS.com
Phone: (310) 526-2283

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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

National Multiple Sclerosis Society: Advocate For Change

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 78
Hosted By: Jon Strum
Guest: Bari Talente

Tags: MS, MultipleSclerosis, MSResearch, mssociety, MSActivist, RealTalkMS

Episode 77: With Shift.ms Founder George Pepper & Shift.ms Community Member Aoife Kirwan


George Pepper was diagnosed with multiple sclerosis in 2009, at the age of 22. He initially found it difficult to connect with others his own age who were living with MS, so George set up a website where people living with MS could meet and share their experiences. That website evolved into an online community called shift.ms, and today, more than 18,000 people participate in the shift.ms community. My guests today are the founder of shift.ms, George Pepper, and Aoife Kirwan, a member of the shift.ms community.

George Pepper

We're also talking about a new report that reminds us that there's a lot of fake health news online, how Medicare rules are costing people living with MS more money, a global response to talking about sex and MS, and a study that will introduce you to the Caregiver Strain Index, a reliable tool in measuring MS caregiver burden.

We have a lot to talk about! Are you ready for RealTalk MS?!
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A solution to Loneliness & MS   :23

Study Results Warn Against “Fake Online Health News”  2:48

Medicare Policies Cost People With MS More Money  8:50

MS International Federation Talks About Sex & MS  12:57

Caregiver Strain Index Is A Valid Measurement of Caregiver Burden  14:33

My Interview with George Pepper & Aoife Kirwan  18:24

Join The RealTalk MS Conversation  30:25

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JOIN THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes.

Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jonstrum@RealTalkMS.com
Phone: (310) 526-2283

___________

LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Give RealTalk MS a Rating & Review

The Most Popular Health Articles of 2018: A Scientific Credibility Review

Trends in Coverage for Disease-Modifying Therapies for Multiple Sclerosis in Medicare Part D

Sex Life & MS

Measuring Burden in Caregivers of People with Multiple Sclerosis: Psychometric Properties of the CSI Questionnaire

Shift.ms

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 77
Hosted By: Jon Strum
Guest: George Pepper & Aoife Kirwan

Tags: MS, MultipleSclerosis, MSResearch, Caregiving, ShiftMS, MSIntFederation, RealTalkMS