RealTalk MS

Past Podcast Episodes

RealTalk MS Episode 29: New Treatment Guidelines For MS Announced


The American Academy of Neurology (AAN) is holding its Annual Meeting this week in Los Angeles. And with more than 10,000 neurologists all in one place, we're talking about a LOT of news coming out of that conference.
Just some of the topics we're talking about on this week's podcast:
  • The AAN announced new guidelines for treating MS.
  • A new study will convince you to begin MS disease-modifying therapy sooner, rather than later.
  • The National MS Society has announced $14.2 million dollars in funding for 45 new research projects aimed at slowing, stopping, and ending MS.
  • Genentech announced some good news for MS patients taking Ocrevus.
  • Biogen announced the results of several MS research studies.
  • Computer-based cognitive training can improve memory for people living with MS.

My guest on the podcast is 3-time Stanley Cup winner and and star of the National Hockey League's Chicago Blackhawks, Bryan Bickell. Bryan retired from hockey last year, after being diagnosed with MS.

Bryan Bickell

We'll talk with Bryan about what it was like to get that diagnosis, what it was like to score that very memorable final goal of his career, and what lies ahead for him. (NOTE: During our conversation, Bryan references a website as “My Fighting Hockey Story”. The correct website is MyFightingStory.com. Sorry for any confusion!)

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AAN Announces New Treatment Guidelines For MS  2:02

Study Indicates Importance of Starting MS Treatment ASAP  4:01

National MS Society Investing $14.2 Million in New Research  6:54

Genentech Has Good News For MS Patients Taking Ocrevus  8:25

Biogen Study Correlates MS Cognitive Decline to Socioeconomic Demographics  10:35

Computer-Based Cognitive Training Improves Memory for People Living with MS  12:49

The MSUnderstood Cafe Gives People A Taste of MS  13:49

Interview with hockey star Bryan Bickell  16:03

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LINKS
If your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 29
Guest: Bryan Bickell
Hosted By: Jon Strum

Tags: MS, multiple sclerosis, AAN, AANAM, MS Treatment Guidelines, Genentech, Biogen, Ocrevus, NMSS, National MS Society, Roche, MSUnderstood Cafe, Bryan Bickell, RealTalkMS

 

RealTalk MS Episode 28: Pediatric MS With Dr. Emmanuelle Waubant


When we think about MS, we tend to think about it as an adult disease. But the National MS Society reminds us that between 8,000 and 10,000 children up to 18 years old are living with MS in the United States. And studies suggest that between 2 and 5% of everyone living with MS has a history of experiencing the onset of at least one MS symptom before the age of 18.

My guest on the podcast is Dr. Emmanuelle Waubant, one of the true pioneers and recognized experts in the field of pediatric MS. We're talking  with Dr. Waubant about some of the challenges involved in diagnosing pediatric MS, which disease-modifying therapies can be used to treat pediatric MS (since the FDA hasn't specifically approved any drug to treat pediatric MS) and how kids living with MS deal with all of the regular growing up challenges that life throws at them.

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Healthcare Spending Doubles For People Living With MS  3:38

Vocal Biomarker Detects MS By the Sound of Your Voice  6:44

Researchers Will Study Quality of MS Care in the U.S.  8:11

2018 Dystel Prize for MS Research To Be Awarded  9:33

Interview with Dr. Emmanuelle Waubant 11:24

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LINKS
If your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com

Healthcare Spending Doubles for People Living With MS

Sonde Health Patents Vocal Biomarker Technology

Study Looks At Quality of MS Care

Dystel Prize For MS Research Awarded to Dr. Frederik Barkhof

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 28
Guest: Dr. Emmanuelle Waubant
Hosted By: Jon Strum

Tags: MS, multiple sclerosis, pediatric MS, MS patient costs, Sonde Health, vocal biomarker, Dartmouth Medical Center, MS Care, Dystel Prize, Dr. Frederik Barkhof