Past Podcast Episodes

Patient-centered research is based on an understanding that patients themselves have unique perspectives that can help to mold, change, and improve the work of finding answers to clinical questions. My guest on the podcast is Laura Kolaczkowski, the co-Principal Investigator for iConquerMS. We're talking about the impact this people-powered research network is having on MS research, and how the first ever patient-driven MS drug development project came about.

We'll also help you wade through the information and misinformation that surrounds whether people with MS should get a flu shot this season. We'll tell you about a study that demonstrates how ballet exercise can help improve balance and motor control for people living with MS, why a new and more powerful MRI scanner is good news for the MS community, a new smartphone-based study that you can be a part of, and a newly-released video manifesto that you have to see!

We have a lot to talk about! Are you ready for RealTalk MS?!

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MS & Flu Shots 5:14

Study: Ballet Exercise Improves Balance & Motor Control in People Living with MS 8:05

Genentech Launches Floodlight Open 11:22

FDA Approves More Powerful MRI for Clinical Use 13:33

National MS Society Releases We Believe, a Video Manifesto 15:41

My Interview with Laura Kolaczkowski 17:06

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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes
in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

STUDY: Targeted Ballet Program Mitigates Ataxia and Improves Balance in Females with Mild-to-Moderate Multiple Sclerosis

Floodlight Open

VIDEO: We Believe

iConquerMS

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 64
Hosted By: Jon Strum
Guest: Laura Kolaczkowski

Tags: MS, MultipleSclerosis, MSActivist, iConquerMS, MSsociety, RealTalkMS

Caregiving carries a lot of challenges. And for some people, it can feel overwhelming. So, what are the things that make being a caregiver for someone living with a chronic illness like MS so challenging?

We're kicking off National Family Caregivers Month with my guest, Dr. Amy Sullivan, Director of Behavioral Medicine, Research and Training at the Mellen Center for Multiple Sclerosis at the Cleveland Clinic, and we're talking about how to best navigate some of the challenges that go along with being a caregiver for someone living with MS.

We're also talking about today's election in the U.S., and what it means for people living with MS, the unresolved status of Ocrevus as a treatment for primary progressive MS in the UK, and the fast-tracking of Mavenclad in the UK. We'll tell you about the bus driver who stood up for a man with MS, an insurance company that will fly people to Mexico and pay them a cash bonus to buy their MS prescription medications there, and we'll share results from the Embracing Carers International Survey.

We have a lot to talk about! Are you ready for RealTalk MS?!

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It's Election Day in the U.S. (and what that means for people living with MS!) :22

The Bus Driver Who Stood Up for a Man with MS 2:49

An Insurer Will Fly People with MS to Mexico to Buy Their Prescription Drugs 4:00

Ocrevus On Hold for People with Primary Progressive MS in the UK 5:49

Mavenclad Fast-Tracked in the UK 7:59

Embracing Carers Campaign & Can Do MS Announce a New Collaboration 9:42

Embracing Carers International Survey Results 10:52

Interview with Dr. Amy Sullivan 12:55

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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app
or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

RealTalk MS Congressional Report Card

CanDo-MS Embracing Carers Program

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 63
Hosted By: Jon Strum
Guest: Dr. Amy Sullivan

Tags: MS, MultipleSclerosis, MSActivist, DrAmyBSullivan, ClevelandClinic, Caregiving, Caregiver, Ocrevus, Mavenclad, EMDSerono, EmbracingCarers, CanDoMS, RealTalkMS

Episode 64: Patient-Driven MS Drug Development with Laura Kolaczkowski

Episode 63: Overcoming Caregiving Challenges with Dr. Amy Sullivan