RealTalk MS

Past Podcast Episodes

Episode 61: Voting IS MS Advocacy with MS Activist Karen Jackson


We're 2 weeks away from an event that's going to have an impact on every person in the United States who's living with MS…or any other chronic illness. Because in 2 weeks time – on November 6th – an election's taking place, and healthcare is on the ballot. Maybe not directly…maybe not explicitly…but make no mistake, the choices that voters in America make on election day are going to have a huge affect on our access to healthcare, the cost of healthcare, and the protection that exists today for people living with pre-existing conditions.
RealTalk MS Congressional Report Card
That's why I'm launching the MS Congressional Report Card. It's an easy way for you to see whether your elected representatives in Congress have supported you and others affected by MS. Every member of Congress has received a letter grade based upon what they did — or didn't do — to support people affected by MS. You'll be able to see exactly how well your Representatives and Senators have supported the issues that directly affect you. And then, with that knowledge in hand, you'll be ready to cast your vote on November 6th.

We're also talking with my special guest, MS Activist Karen Jackson, about access issues when it comes to casting your vote. We'll tell you about a documentary film that features a new way of interpreting the many sides of living with MS, a possible predictor of brain atrophy in Progressive MS, a new framework for examining how exercise impacts neuroplasticity, (neuro-what???!! Don't worry! I promise we'll break it all down in plain English for you!) and more!

We have a lot to talk about! Are you ready for RealTalk MS?!

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Introducing the RealTalk MS Congressional Report Card  1:50

A New Documentary — “Seeing MS from the Inside Out”  5:29

Neurofilament Light Chain Level as a Predictor of Brain Atrophy in Progressive MS  8:38

Conceptual Framework Proposed to Examine Role of Exercise in MS  11:00

Interview with MS Activist Karen Jackson  13:15

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LINKS
If your podcast app doesn't show these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

RealTalk MS Congressional Report Card

Video: “Seeing MS from the Inside Out”

Neurofilament Light Levels in the Blood of Patients with Secondary Progressive MS are Higher than in Primary Progressive MS and May Predict Brain Atrophy In Both MS Subtypes

Integrative CNS Plasticity with Exercise in MS: The PRIMERS (Processing, Integration of Multisensory Exercise-Related Stimuli) Conceptual Framework

Give RealTalk MS a Rating & Review

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 61
Hosted By: Jon Strum
Guest: Karen Jackson

Tags: MS, MultipleSclerosis, MSActivist, MSInsideOut, KesslerFdn, RealTalkMS

 

Episode 60: ECTRIMS Wrap-Up


I'm back from Berlin, Germany, where I attended the 34th annual ECTRIMS Congress, and the single biggest challenge that I faced during the 3-day conference was trying to decide which sessions I wanted to attend. With 80 live presentations, more than 1,000 poster presentations, and any number of meetings and even casual conversations that seem to pop up everywhere, it's challenging trying to take it all in.  Although ECTRIMS has ended, there's still a bit more to report from the conference, so please consider this podcast episode as the ECTRIMS wrap-up.

We're talking about the effectiveness of a cannabidiol spray on MS spasticity. We'll tell you how environmental factors can impact MS, and we'll explain the two different environments you should be paying attention to. And you'll hear about the study that identified how neurofilament light chain levels can be used in clinical practice to identify which people living with relapsing remitting MS might be at greater risk of increased disease activity and progression.

And we'll wrap up our ECTRIMS 2018 episode by re-visiting my conversation with Bruce Bebo, Executive Vice-President of Research at the National MS Society. Bruce will share his perspective on some of the presentations that caught his attention during the conference, and we'll talk about the $12 million dollar research investment that the National MS Society had just announced.

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The Efficacy of Cannabidiol Spray on MS Spasticity  1:50

The Impact of Environmental Factors on MS  3:35

Neurofilament light chain may identify people with RRMS who are at greater risk of disease progression  5:36

Interview with Bruce Bebo, Executive Vice-President of Research at the National MS Society  9:27

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LINKS
If your podcast app doesn't show these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Download the RealTalk MS App for iOS

Download the RealTalk MS App for Android

Video: “Seeing MS from the Inside Out”

ECTRIMS 2018

Give RealTalk MS a Rating & Review

___________

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 60
Hosted By: Jon Strum
Guest: Bruce Bebo, Ph.D.

Tags: MS, MultipleSclerosis, ECTRIMS2018, MSInsideOut, RealTalkMS