RealTalk MS

Past Podcast Episodes

Episode 368: Living a More Purposeful Life with MS with Dr. Evan Smith


Living with the unpredictability of MS sometimes feels like riding a rollercoaster. As you experience the twists and turns of life with MS, you can sometimes feel unmoored from the person you thought you were. You can sense your priorities, motivations, and values shifting. And, in those moments, it becomes easy to lose your sense of purpose.

Dr. Evan Smith

Clinical assistant professor and rehabilitation psychologist at the University of Michigan, Dr. Evan Smith, joins me to discuss how to identify and reconnect with your core values and live a more purposeful and satisfying life.

We'll also tell you about Creating Order, an art exhibit featuring 12 artists living with MS. (Don't miss our conversation with the co-curators and lead artist in this unique exhibit!)

 And we're sharing the details of MS Stand Up, a night of comedy and cocktails at the Gotham Comedy Club.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Greetings from ECTRIMS!  :22

Our 7th anniversary is one week away!  2:00

Coming Up: The importance of staying connected to your core values  2:30

Creating Order art exhibit features 12 artists living with MS  3:35

My conversation with Creating Order co-curators Pam Schoenberg and Ted Meyer, and lead artist, Susan Trachman  4:27

MS Stand Up is happening September 30 at the Gotham Comedy Club    15:24

Dr. Evan Smith discusses how to lead a purposeful life while living with MS  16:54

Share this episode  33:17

Have you downloaded the free RealTalk MS app?  33:38

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/368

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Creating Order exhibit at the DNJ Gallery
https://dnjgallery.net

MS Stand Up
https://msstandup.org

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 368
Guests: Pam Schoenberg, Ted Meyer, Susan Trachman, Dr. Evan Smith

 

Episode 367: Budgeting for Living with MS with Bruce McClary


Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year.  Even with insurance, that can turn out to be a heavy lift.

One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing budgeting and managing your personal finances when you're living with MS, I think we're really talking about preserving your quality of life.

Bruce McClary

Joining me with strategies for budgeting and managing debt when you're living with MS is the Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary.

We'll also tell you about the updated Pathways to Cures Research Roadmap and the first ever global landscape analysis of MS research funding.

We're sharing very encouraging results from the Phase 2 open-label extension study of Fenebrutinib, an experimental BTK inhibitor.

We'll give you the details of a pilot study that demonstrated what may be a successful treatment for sexual dysfunction among men and women living with MS.

We'll tell you why middle-aged people with MS may want to consider resistance training.

And we'll tell you how to register for the National MS Society's Voting Without Barriers webinar. 

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Budgeting for Living with MS  :22

The Pathways to Cures Research Roadmap has been updated and refined  1:25

There's very encouraging news from the Phase 2 open-lable extension study of Fenebrutinib    5;31

Results from a pilot study point to successful treatment for sexual dysfunction among men and women living with MS  6:35

Study results show that resistance training is beneficial for middle-aged people with MS  9:52

We're 8 weeks away from election day in the U.S. and the National MS Society is hosting a webinar about access to polling places  11:36

Senior Vice President of Membership and Media Relations at the National Foundation for Credit Counseling, Bruce McClary, shares tips and strategies for taming your household budget and budgeting for living with MS  15:49

Share this episode  33:16

Have you downloaded the free RealTalk MS app?  33:36

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/367

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Episode 297: From the Pathways To Cures Global Summit (Part 1)
https://realtalkms.com/297

RealTalk MS Episode 298: From the Pathways to Cures Global Summit (Part 2)
https://realtalkms.com/298

The Refined Pathways To Cures Research Roadmap
https://journals.sagepub.com/doi/10.1177/13524585241266483

The First Global Landscape Analysis of Multiple Sclerosis Research Funding
https://journals.sagepub.com/doi/full/10.1177/13524585241265961

STUDY: Tibial Nerve Stimulation in the Management of Primary Sexual Dysfunction in Patients with Multiple Sclerosis: A Pilot Randomized Control Trial
https://link.springer.com/article/10.1007/s10072-024-07687-2

STUDY: Is Resistance Training an Option to Improve Functionality and Muscle Strength In Middle-Aged People with Multiple Sclerosis? A Systematic Review and Meta-Analysis
https://www.mdpi.com/2077-0383/13/5/1378

REGISTER for the Voting Without Barriers Webinar
https://p2a.co/Dqy1Xpk

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 367
Guest: Bruce McClary