Past Podcast Episodes

Too often, care partners remain invisible as they deal with the emotional, physical, and even financial burdens that go along with supporting a loved one who's living with multiple sclerosis.

November is National Family Caregivers Month, and I'm devoting this entire episode to a roundtable discussion with four remarkable care partners as they share their insights, experiences, and lessons learned caring for a loved one with MS. You won't want to miss my conversation with Barbara, Marina, Maiya, and Matt.

We have a lot to talk about! Are you ready for RealTalk MS??!

Giving thanks  :22

This Week: A roundtable discussion with four amazing MS care partners   1:31

Barbara, Marina, Maiya, and Matt discuss their roles as care partners  1:58

Share this episode  33:22

Have you downloaded the free RealTalk MS app?  33:43

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/378

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The MS Care Partner Connection
https://mscarepartnerconnection.com

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 378
Guests: Barbara, Marina, Maiya, and Matt

 

There are some people who, once you meet them, it's impossible to forget them. They seem to leave an indelible impression. Lydia Emily is one of those people. Whether it's through her art that occasionally escapes the canvas to be expressed as massive urban murals proclaiming End MS, or through her outspoken MS advocacy. Lydia Emily is a force. Now, along with co-author Lenlee Keep, Lydia Emily has channeled that energy into a book entitled, The Art of Hope: The Life and Art of Lydia Emily.

Lydia Emily and her co-author, Lenlee Keep, join me this week to talk about the process of writing the book and some of the issues affecting people with MS that Lydia Emily is passionate about.

We'll also tell you about study results that provide an answer to how nerve cells die in MS.

We'll share results from a study that shows MS progression may not be directly connected to the number of lesions someone may have.

And we'll tell you about research that provides evidence for continuing your MS disease-modifying therapy, no matter your age.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The Art of Hope   :22

A study uses a novel mouse model to explain how nerve cells die in MS  2:17

Study results show that MS progression may have less to do with the number of lesions and more to do with what's happening inside those lesions  5:23

Study results provide evidence for continuing your DMT, even as you age  9:15

Artist Lydia Emily and co-author Lenlee Keep discuss The Art of Hope: The Life and Art of Lydia Emily  14:17

Share this episode  34:50

Have you downloaded the free RealTalk MS app?  35:11

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/377

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Remyelination Protects Neurons from DLK-Mediated Neurodegeneration
https://www.nature.com/articles/s41467-024-53429-5

STUDY: Advanced MRI Measures of Myelin and Axon Volume Identify Repair in Multiple Sclerosis
https://onlinelibrary.wiley.com/doi/10.1002/ana.27102

STUDY: Impact of Discontinuing Disease-Modifying Therapies On Healthcare Utilization Among Midlife Patients with Multiple Sclerosis in the United States
https://www.jmcp.org/doi/10.18553/jmcp.2024.30.11.1248

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 377
Guests: Lydia Emily and Lenlee Keep