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Past Podcast Episodes

Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox


Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home.

Dr. Robert Fox

My guest this week is the Managing Director of the North American Research Committee on Multiple Sclerosis, Dr. Robert Fox. And we're taking a deep dive into the NARCOMS patient registry.

We'll also tell you about the latest version of AlphaFold, a highly advanced artificial intelligence model designed to help scientists design new drugs and target disease more effectively.

Evidence shows that the Epstein-Barr Virus (EBV) triggers MS. We're reviewing the results of a study that may help scientists better understand the relationship between EBV and MS.

The International Progressive MS Alliance upcoming webcast, Mobility Challenges in Progressive MS, takes place this Thursday, June 20th. Find out where you can register and why you won't want to miss this!

And we're just 6 weeks away from Crush MS, a fundraising event in Napa Valley, California that raises money to support MS research. I'll be there, and I hope you can join me! We're sharing all the details.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: The NARCOMS Patient Registry  :22

The most advanced AI on earth is focused on discovering new medications  1:40

Researchers learn that Epstein-Barr Virus re-activates and drives inflammation during an MS relapse  4:00

The Progressive MS Alliance hosts a live global webcast this Thursday, June 20th!  7:17

Crush MS is just 6 weeks away  8:39

Dr. Robert Fox takes us on a deep dive into the NARCOMS patient registry  10:08

Share this episode  26:12

Next Week: A special conversation with National MS Society President and CEO, Cyndi Zagieboylo  26:33

Have you downloaded the free RealTalk MS app?  27:17


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/355

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The NARCOMS Patient Registry
https://www.narcoms.org

STUDY: Multiple Sclerosis Patient-Derived Spontaneous B Cells Have Distinct EBV and Host Gene Expression Profiles In Active Disease
https://nature.com/articles/s41564-024-01699-6

REGISTER for the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS
https://msif.org/webcast-mobility

Get Tickets for Crush MS
https://www.crushms.org

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 355
Guests: Dr. Robert Fox

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Episode 354: From the Consortium of MS Centers 38th Annual Meeting — Part 2


Two weeks ago, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. This is Part 2 of our coverage from that meeting.

In this episode, we're sharing our conversations with some of the experts who were at the meeting to present their research.

You'll hear the National MS Society's Executive Vice President for Advocacy and Healthcare Access, Bari Talente, share her thoughts on why getting early support when you've been diagnosed with MS can make a difference in how you begin your MS journey.

Dr. Nancy Sicotte talks about why early diagnosis and treatment are important in ensuring the best long-term patient outcomes.

Dr. Brian Sandroff asks and answers the question, “Does exercise improve cognitive function in MS?”

And Dr. Anthony Feinstein shares what he and his team have learned about how cannabis impacts people with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Part 2 of our coverage of the CMSC Annual Meeting  :22

National MS Society Executive Vice President for Advocacy and Healthcare Access, Bari Talente, discusses the importance of finding early support when you've been diagnosed with MS 1:18

Dr. Nancy Sicotte explains why early diagnosis and treatment make a difference in MS  8:57

Dr. Brian Sandroff poses (and answers) the question, “Doe exercise improve cognitive functioning in MS?”  17:11

Dr. Anthony Feinstein shares evidence gathered from his team's research into how cannabis impacts MS   23:58

Share this episode  38:13

Next Week: The North American Research Committe on Multiple Sclerosis (NARCOMS) with Managing Director, Dr. Robert Fox  38:34

Have you downloaded the free RealTalk MS app?  38:54


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/354

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Episode 353: From the Consortium of MS Centers 38th Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger
https://realtalkms.com/353

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 354
Guests: Bari Talente, Dr. Nancy Sicotte, Dr. Brian Sandroff, Dr. Anthony Feinstein

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Filed Under: Uncategorized

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