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Past Podcast Episodes

Episode 333: Improving Communication Between You and Your Neurologist with Dr. Luis Manrique-Trujillo


You've just had your appointment with your neurologist or MS Specialist and you're on your way home, feeling like you weren't heard. Maybe there wasn't sufficient time. Or it might feel like your opinion simply isn't valued. Your frustration could even be the result of language issues and cultural barriers that make communication difficult. Whatever the reason, it doesn't have to be this way.

Dr. Luis Manrique-Trujillo

Dr. Luis Manrique-Trujillo joins me this week to share tips and strategies that will improve the quality of communication between you and every member of your MS care team. Dr. Manrique-Trujillo is a neurologist specializing in neuroimmunology and multiple sclerosis at MedStar Georgetown University Hospital in Washington, D.C.

We're also sharing some fascinating research that traces the gene variants that increase someone's risk of developing MS all the way back to the Bronze Age.

We'll tell you about a small study that may explain how the Epstein-Barr Virus triggers MS.

We'll tell you about a class-action lawsuit that accuses Pharmacy Benefit Managers of illegal collusion and price-fixing. (And we'll explain why this lawsuit could be a huge step toward lowering the cost of your prescription medications)

And we're sharing our plans for RealTalk MS in 2024.

We have a lot to talk about! Are you ready for RealTalk MS??!


My New Year's Resolutions for RealTalk MS  :22

This Week: Improving communication between you and your neurologist  4:59

STUDY: Ancient DNA reveals how MS risk genes arose and spread across Europe  5:59

STUDY: EBV-specific T-cells may play a key role in developing MS  9:36

An important class-action lawsuit has been filed against Pharmacy Benefit Mangers  11:18

Dr. Luis Manrique-Trujillo shares strategies for improving communication between you and your neurologist   15:41

Share this episode  34:19

Have you downloaded the free RealTalk MS app?  34:40


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/333

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Elevated Genetic Risk for Multiple Sclerosis Emerged in Steppe Pastoralist Populations
https://www.nature.com/articles/s41586-023-06618-z

STUDY: Expanded T Lymphocytes in the Cerebrospinal Fluid of Multiple Sclerosis Patients are Specific for Epstein-Barr-Virus-Infected B Cells
https://pnas.org/doi/abs/10.1073/pnas.2315857121

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 333
Guest: Dr. Luis Manrique-Trujillo

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Filed Under: Uncategorized

Episode 332: Managing the Cost of Generic, Biosimilar, and Other Prescription Medications with Robin LaRue


If you remember your Economics 101 class, the introduction of generic and biosimilar drugs should cause prices to drop. Yet, when it comes to MS disease-modifying therapies that isn't always the case.

The high cost of prescription drugs

MS Navigator Robin LaRue joins me this week to discuss how to manage the sometimes crazy costs of MS prescription medications.

We're also sharing results from a study that show there is absolutely no association between consuming dairy and gluten products and MS disease activity.

We'll tell you about two different studies that suggest that non-pharmaceutical interventions may be effective in lessening MS fatigue.

We're sharing results from a trial that reveal an innovative approach to supporting MS caregivers.

And we'll tell you about 4.6 million euro in new funding from the International Progressive MS Alliance that will go toward research focused on developing new treatments for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Managing the cost of MS medications  :22

STUDY: No association between consuming dairy and gluten products and MS disease activity  1:42

STUDY: SMS-messaging is shown to improve MS-related fatigue  4:50

STUDY: Talk therapy is shown to improve MS-related fatigue  8:36

STUDY: Remote coaching and online information improves the well-being of MS caregivers  10:43

International Progressive MS Alliance announces new research funding  13:32

MS Navigator Robin LaRue discusses how to manage the cost of MS prescription medications   15:57

Share this episode  27:48

Have you downloaded the free RealTalk MS app?  28:09


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/332

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Dairy and Gluten in Disease Activity in Multiple Sclerosis
https://journals.sagepub.com/doi/10.1177/20552173231218107

STUDY: Text Messaging Intervention for Fatigue Self-Management in People with Stroke, Spinal Cord Injury, and Multiple Sclerosis: A Pilot Study
https://sciencedirect.com/science/article/abs/pii/S1936657423001310?via%3Dihub

STUDY: Effectiveness of a Blended Booster Programme for the Long-Term Outcome of Cognitive Behavioural Therapy for MS-Related Fatigue: A Randomized Controlled Study
https://journals.sagepub.com/doi/full/10.1177/13524585231213258

STUDY: Effect of 2-Arm Intervention on Emotional Outcomes in Informal Caregivers of Individuals with Multiple Sclerosis: A Randomized Pilot Study Trial
https://meridian.allenpress.com/ijmsc/article/25/6/252/495534/Effect-of-2-Arm-Intervention-on-Emotional-Outcomes

International Progressive MS Alliance
https://progressivemsalliance.org

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 332
Guest: Robin LaRue

Privacy Policy

 

Filed Under: Uncategorized

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