Past Podcast Episodes

If you remember your Economics 101 class, the introduction of generic and biosimilar drugs should cause prices to drop. Yet, when it comes to MS disease-modifying therapies that isn't always the case.

The high cost of prescription drugs

MS Navigator Robin LaRue joins me this week to discuss how to manage the sometimes crazy costs of MS prescription medications.

We're also sharing results from a study that show there is absolutely no association between consuming dairy and gluten products and MS disease activity.

We'll tell you about two different studies that suggest that non-pharmaceutical interventions may be effective in lessening MS fatigue.

We're sharing results from a trial that reveal an innovative approach to supporting MS caregivers.

And we'll tell you about 4.6 million euro in new funding from the International Progressive MS Alliance that will go toward research focused on developing new treatments for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Managing the cost of MS medications :22

STUDY: No association between consuming dairy and gluten products and MS disease activity 1:42

STUDY: SMS-messaging is shown to improve MS-related fatigue 4:50

STUDY: Talk therapy is shown to improve MS-related fatigue 8:36

STUDY: Remote coaching and online information improves the well-being of MS caregivers 10:43

International Progressive MS Alliance announces new research funding 13:32

MS Navigator Robin LaRue discusses how to manage the cost of MS prescription medications 15:57

Share this episode 27:48

Have you downloaded the free RealTalk MS app? 28:09

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Dairy and Gluten in Disease Activity in Multiple Sclerosis
https://journals.sagepub.com/doi/10.1177/20552173231218107

STUDY: Text Messaging Intervention for Fatigue Self-Management in People with Stroke, Spinal Cord Injury, and Multiple Sclerosis: A Pilot Study
https://sciencedirect.com/science/article/abs/pii/S1936657423001310?via%3Dihub

STUDY: Effectiveness of a Blended Booster Programme for the Long-Term Outcome of Cognitive Behavioural Therapy for MS-Related Fatigue: A Randomized Controlled Study
https://journals.sagepub.com/doi/full/10.1177/13524585231213258

STUDY: Effect of 2-Arm Intervention on Emotional Outcomes in Informal Caregivers of Individuals with Multiple Sclerosis: A Randomized Pilot Study Trial
https://meridian.allenpress.com/ijmsc/article/25/6/252/495534/Effect-of-2-Arm-Intervention-on-Emotional-Outcomes

International Progressive MS Alliance
https://progressivemsalliance.org

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RealTalk MS Episode 332
Guest: Robin LaRue

Privacy Policy

This is the week that a lot of us make resolutions for the coming year. And I'm hoping that after you hear my conversation with Dr. Claire Riley, many of you will resolve to become donors to the National Multiple Sclerosis Brain Bank.

Dr. Claire Riley

Resolving to donate brain and tissue to the National MS Brain Bank is a new year's resolution that goes far beyond the standard eat better and exercise more promises that so many of us make to ourselves every year. It's deeply meaningful, profoundly personal, and, as Dr. Riley describes it, it's a heroic step in choosing to play an important role in curing MS.

We're also sharing the details about a partial hold that the FDA has placed on another clinical trial for an experimental MS disease-modifying therapy.

And we'll share some potentially disturbing news about how artificial intelligence is being leveraged to deny patients medically necessary care.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Becoming a donor to the National MS Brain Bank :23

FDA puts a partial hold on Phase 3 clinical trial investigating Fenebrutinib 1:23

Are health insurers using AI for all the wrong reasons? 4:49

Dr. Claire Riley discusses why you should consider being a donor to the National MS Brain Bank 8:09

Share this episode 28:40

Have you downloaded the free RealTalk MS app? 29:01