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Past Podcast Episodes

Episode 324: Avoiding the Risks of Misdiagnosing MS with Dr. Andrew Solomon


MS is misdiagnosed too often, which leaves some people who don't have MS receiving expensive disease-modifying therapy that they don't need, while leaving other people who do have MS still not receiving treatment with a disease-modifying therapy that will slow disability progression and preserve their quality of life longer.

My guest, Dr. Andrew Solomon, is the lead author of a paper published by a team of international experts that provides updated guidance for healthcare professionals on clinical approaches to diagnosing MS. Dr. Solomon joins me to discuss why MS can be difficult to diagnose and how that situation can be improved upon.

Dr. Andrew Solomon

We're also sharing the results of a study that showed how neurofilament light chain levels in the blood can predict MS disability progression one or two years before that worsening occurs.

For the past five years, we've been following the path of an investigative stem cell therapy through clinical trials. We'll tell you why the company behind this therapy announced it was stopping its Phase 2 trial.

If you're a female living with MS, we're sharing an invitation for you to participate in an important online survey about a topic that's too often overlooked.

And we'll tell you about the results of a study that underscore the value and importance of staying on your disease-modifying therapy.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: The risks of misdiagnosing MS  :22

Results from a study show that neurofilament light chain level can predict future disability progression  1:37

We've been following an investigative stem cell therapy since 2018. Now, the company developing this therapy is ending the Phase 2 clinical trial  4:59

If you're a female living with MS, we have an invitation for you to participate in an important survey  7:15

Study results underscore the importance of staying on your disease-modifying therapy  9:01

Dr. Andrew Solomon discusses why MS is difficult to diagnose and what experts are doing about that  12:54

Share this episode  30:41

Have you downloaded the free RealTalk MS app?  31:02


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/324

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Neurofilament Light Chain Elevation and Disability Progression in Multiple Sclerosis
https://jamanetwork.com/journals/jamaneurology/article-abstract/2811628

SURVEY: Patient Education Preferences Regarding Sexual Health in Women with Multiple Sclerosis
https://openredcap.nyumc.org/apps/redcap/surveys/?s=D7L4NKPWMJA98RXP

STUDY: Impact of Adherence to Disease-Modifying Drugs in Multiple Sclerosis: A Study on Italian Real-World Data
https://www.sciencedirect.com/science/article/abs/pii/S2211034823005953

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 324
Guest: Dr. Andrew Solomon

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Episode 323: Support for Veterans with MS with Izzy Abbass and a New Project for Jamie-Lynn Sigler


More than 70,000 U.S. veterans are living with MS. That's why the only federal funding specifically earmarked for MS research comes from the U.S. Department of Defense. It's why the U.S. Department of Veterans Affairs has established the Multiple Sclerosis Centers of Excellence. And it's why, in 2019, the National MS Society established a strategic partnership with the U.S. Department of Veterans Affairs.

This week, we're saluting the men and women of our armed services, and we're highlighting some of the resources available to U.S. veterans who are living with MS.

Jamie-Lynn SIgler and Izzy Abbass

Izzy Abbass, the Co-Chair of the Paralyzed Veterans of America MS Committee, joins me to discuss all the ways the PVA assists U.S. veterans in obtaining their VA benefits.

We're also sharing the results of a study that compared the efficacy of being treated with autologous hematopoietic stem cell transplantation (aHSCT) and being treated with a high-efficacy disease-modifying therapy.

We'll tell you about the results of a study that may begin to explain why African Americans who are living with MS often experience a more severe disease course.

We'll give you the details about where and how to register for this Thursday's International Progressive MS Alliance's global webcast that's focused on treatments and new research for cognitive challenges in progressive MS.

And actress Jamie-Lynn Sigler is also joining me this week to talk about her MS journey and to share some news about a new project that she has developed for people living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!


This Week: Resources for U.S. Veterans living with MS  :22

My guest, Izzy Abbass, explains how the PVA assists U.S. Veterans with MS in receiving their VA benefits  2:41

A study compared the efficacy of autologous hematopoietic stem cell transplantation (aHSCT) with a high-efficacy disease-modifying therapy  11:21

Results of a study may begin to explain why African Americans who are living with MS often experience a higher level of disease activity and faster disability progression  14:36

This Thursday, the International Progressive MS Alliance is hosting a global webcast exploring treatments and research focused on cognitive challenges in progressive MS  17:31

Jamie-Lynn Sigler discusses her new guide for people living with MS  19:13

Share this episode  30:25

Have you downloaded the free RealTalk MS app?  30:45


SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/323

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!


LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society: Resources for U.S. Veterans with Multiple Sclerosis
https://nationalmssociety.org/Resources-Support/Find-Support/Veterans-with-Multiple-Sclerosis

U.S. Department of Veteran Affairs: Multiple Sclerosis Centers of Excellence
https://www.va.gov/ms

Paralyzed Veterans of America: Multiple Sclerosis Resources
https://pva.org/research-resources/multiple-sclerosis

STUDY: Autologous Hematopoietic Stem Cell Transplantation is Superior to Alemtuzumab in Patients with Highly Active Relapsing Multiple Sclerosis and Severe Disability
https://sciencedirect.com/science/article/pii/S2211034823005977

STUDY: African American Patients with Multiple Sclerosis (MS) Have Higher Proportions of CD19+ and CD20+ B-Cell Lineage Cells in Their Cerebrospinal Fluid than White MS Patients
https://sciencedirect.com/science/article/abs/pii/S2211034823005485

REGISTER for Thursday's Global Webcast on Cognitive Challenges in Progressive MS
https://msif.org/cognitive-webcast

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review


Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 323
Guests: Izzy Abbass and Jamie-Lynn Sigler

Privacy Policy

 

Filed Under: Uncategorized

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