Living with MS means living with uncertainty, possible physical disability or cognitive dysfunction, bouts of crushing fatigue, mood changes, and let's not forget the very real irritation of well-meaning people telling you how healthy you look. Just processing the world around you can feel challenging.
In this episode, psychologist Dr. Miriam Franco joins me to discuss how developing a growth mindset can make all the difference in how you experience your MS journey.
We're also sharing a real-world example of how the drastic cuts in federal funding are already impacting MS care.
We'll tell you about the first country in the world to approve Tolebrutinib, a new disease-modifying therapy for nonrelapsing secondary progressive MS. And we'll explain why people are particularly excited about this medication.
We'll share details about the MS Clinical Imaging and Data Resource that's been launched by the International Progressive MS Alliance.
We'll tell you how and where to catch the MS Standup Comedy Benefit next Monday in New York.
And we're reminding you about your opportunity to impact future MS therapies by helping the FDA better understand what living with MS is really like.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: Developing a growth mindset :22
How those federal research funding cuts are impacting MS patient care 1:30
United Arab Emirates becomes the first country in the world to approve Tolebrutinib for nonrelapsing secondary progressive MS 5:05
The International Progressive MS Alliance launches an MS Clinical Imaging and Data Resource open to the MS research community 8:32
The MS Standup Comedy Benefit takes place next Monday in New York 10:15
Add your voice and participate in the Shaping Tomorrow Together initiative 11:04
Dr. Miriam Franco discusses what it means to have a growth mindset when you're living with MS 14:50
Share this episode 34:11
Next week's episode 34:31
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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!
Email: jon@realtalkms.com
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
PARTICIPATE: Take the Shaping Tomorrow Together Survey
https://s.alchemer.com/s3/Perspectives-on-MS
REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA
https://nmss.quorum.us/event/25463
VIDEO: Dr. Robert Fox, Principal Investigator in the Phase 3 Clinical Trial for Tolebrutinib and Secondary Progressive MS
https://youtu.be/tJQ93qdlXrU?si=S5jREy5ixVcE7ol-
VIDEO: Dr. Jiwon Oh, Principal Investigator in the Phase 3 Clinical Trial for Tolebrutinib and Relapsing-Remitting MS
https://youtu.be/zcBmAHRTotA?si=n86KRjB9Xt9sdZMg
The International Progressive MS Alliance Clinical Imaging and Data Resource
https://progressivemsalliance.org/ms-clinical-and-imaging-data-resource
ATTEND: MS Stand-Up Comedy Benefit
https://msstandup.org
Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms
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https://itunes.apple.com/us/app/realtalk-ms/id1436917200
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RealTalk MS Episode 418
Guest: Dr. Miriam Franco
