Past Podcast Episodes

If you're a regular listener, you've heard me say that the things that people affected by MS want the most — access to quality healthcare, affordable prescription medications, and funding for MS research — are, to a large extent, functions of public policy. The people who decide whether we get these things are our elected officials at both the state and federal level. That's why advocacy should be a high priority for everyone affected by MS.

And make no mistake. MS advocacy delivers real results. Joining me in exploring how advocacy drives changes that improve the lives of people living with MS, and why you may want to consider becoming an MS activist, are Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz.

Holly and Angel

Ready to learn more about MS advocacy? You can take the next step from the comfort of your own home. We're sharing the details of next week's virtual MS Activist Rally.

We'll tell you about a study that found a Mediterranean Diet could have a positive impact on cognition among people living with MS

You'll learn about a clinical trial that's currently underway to determine whether aerobic exercise can promote myelin repair.

We're sharing the details about an upcoming International Progressive MS Alliance webcast that's focused on developing treatments for progressive MS.

And we'll tell you how high school seniors or college graduates who are affected by MS can apply for an Oscar the MS Monkey academic scholarship.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're all about MS advocacy :22

The virtual MS Activist Rally takes place March 28. Are you registered??? 5:22

STUDY RESULTS: Mediterranean Diet Is associated with cognition in MS 8:01

A clinical trial is underway to determine whether aerobic exercise can promote myelin repair 9:43

The International Progressive MS Alliance is hosting a webcast focused on developing treatments for progressive MS 11:01

Oscar the MS Monkey is accepting academic scholarship applications from high school seniors and college graduates who are affected by MS 11:57

Holly Pendell, the National MS Society's Associate Vice-President of Advocacy and MS activist Angel Hardy Heinz discuss how advocacy makes a real difference in the lives of people affected by MS, and how you can get involved 13:49

Share this episode 27:12

Have you downloaded the free RealTalk MS app? 27:32

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society MS Activist Rally registration
https://p2a.co/Rally2023

STUDY: Mediterranean Diet is Associated with Cognition in Multiple Sclerosis
https://aan.com/MSA/Public/Events/AbstractDetails/52954

Webcast: Developing Treatments to End MS Progression registration
https://msif.org/progressiveMSwebcast

Oscar the MS Monkey Academic Scholarship Application
http://mroscarmonkey.org/site/Scholarship%20Application%202023.pdf

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

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RealTalk MS Episode 290
Guests: Holly Pendell and Angel Hardy Heinz

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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For many people, one of the most challenging aspects of living with MS is living with uncertainty. Living with unanswerable questions like, “Is today the day I experience a relapse?” “Will my disability worsen?” “Will I be able to continue working?” “Will I be able to take care of my family?”

These are all very real questions, and while there may not be answers for them today, there are steps you can take and strategies you can adopt to ensure that you're managing and minimizing the uncertainty of living with MS.

Dr. Laura Hancock and Sarah Wolfe

Joining me to talk about her journey as a mom living with MS and to share how she's learned to cope with the uncertainty of MS is MS advocate Sarah Wolfe. Also joining our conversation with specific strategies for living your best life despite the uncertainties of MS is Dr. Laura Hancock, a neuropsychologist at the University of Wisconsin School of Medicine and Public Health.

It's a big topic, and I'm devoting this entire MS Awareness Week episode of RealTalk MS to my conversation with Sarah Wolfe and Dr. Laura Hancock.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: It's MS Awareness Week and we're talking about living with the uncertainty of MS :22

MS advocate Sarah Wolfe and Neuropsychologist Dr. Laura Hancock discuss the many different facets of successfully living with the uncertainty of MS 3:38

Share this episode 39:55

Have you downloaded the free RealTalk MS app? 40:15